Thursday, March 31, 2011

Have we found Eman?

Yes we have, you rapists!  Yes we have.

5 Things My World Showed Me Today

1.  Cobra's like to take vacations too.

2.  Moammar (Muammar, Muʿammar) al-Gadhafi (Gaddafi, Qaḏḏāfī) holds 2 consistencies:
         i.  his middle name is Muhammad (across the board);
        ii.  he refuses to give in.

3.  "911 is a joke" in many areas.

4.  Too much fear and you'll be afraid of your own shadow.

5.  When it comes to student loans and paying for college, no matter what, have a plan A, B, C, D, E....whatever it takes to NEVER have to take out a loan, even if that means community college.

Be well.

Be patient.

Be in the moment.


Wednesday, March 30, 2011

PotsieMommy Singing AbbaFather

Such a sweet voice.
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Eman al-Obeidi

Tweet from The Daily Beast (thedailybeast)
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What Is Neuroplasticity?

One of my quests is to give more exposure to this science.  Enjoy!


Spotlight On: MamaSick's Blog (@Mamasick on Twitter)

For my fellow chronic illness peeps, I love MamaSick's down-to-earth blogging. She's a chronic illness sufferer, wife and mother. And despite the odds, she finds the time to share her life through her writing.

At this time she is accepting guest bloggers, so go over to her site and have a look-around. I have been inspired much by her blogging and interacting with her on Twitter.

Mama Sick

A Conversation?

5 Things My World Showed Me Today

1.  Algae in the Connecticut River looks like "dried up paper towel" (cited from NPR).

2.  People fighting for democracy believe that it should happen overnight.

3.  Grasping causes avoidable suffering.

4.  You can call your doctor and be waiting until you die to hear back from them.

5.  Good doctors are sometimes the hardest to contact.

Be well.

Be patient.

Be in the moment.


The Greatest Healing

A Demonstration of Dysautonomia (POTS)

Bedridden: In Need Of Intravenous Fluids

This Doctor Visit Was A Fail: I Went Faint

Dysautonomia Fainting POTS, NCS, NMH

Microperfusion to the Pons: Another IV. Again.

Monday, March 28, 2011

5 Things My World Showed Me Today

1. The peanut allergy scare is going too far.

2. The President Of The United States gave "that speech" on Libya to shut Congress up.

3. The "Bail Out" deficit is WAY less than originally predicted.

4. People falsely believe that wind power is THE TOTAL answer.

5. One mustn't forget to pay their electric bill when buying an electric car.

Be well.

Be patient.

Be in the moment.

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Michele Bachmann Saves America Ep. 1: What a God Wants

Funny as all-get-out!

Dr. Horrible's Sing-Along Blog Act 1 HD (Subtitles English y Castellano)

Saturday, March 26, 2011

Friday, March 25, 2011

Thank God for Earth Angels (@YellowGirlTaz)

I was sitting so much pain that I thought I was gonna lose my mind, when Crystal (@yellogirltaz) sent me the following email (and I am sure lots of you have already read it):


by Michael Jordan Segal, MSW

There is a book and movie called "The Secret" which describes how to find happiness, wealth, good health. It was, and still is, a phenomenal success. The book describes many well known individuals throughout the ages, documenting their ability to "know the secret."

What is "the secret"? According to the book, the "secret" is what is referred to as "the Law of Attraction." More simply put, "the way one thinks has a direct relationship to what happens to the individual." If one thinks the situation will be good, it will. If one thinks things will go badly, they will. It does not matter what subject you think about. According to "The Law of Attraction" if you truly think and believe there will be a parking spot up close at the mall, there will be one. If you truly think and believe your life will be terrible, it will be. It is more than "the power of positive thinking," but that's a very good beginning.

I often tell the story of when I was hurt. My attitude was very negative. I thought: "Before I was injured I could do 500 things really well; now, because of my physical limitations, I can only do 200 things well." I was constantly dwelling on the 300 things I had lost. However, with time I learned to refocus my thoughts to the 200 things I could still do. That thinking, and my new positive attitude, were so vital for me, as well as vital for everyone else.
Am I saying, "If one believes and thinks positively everything will be great"? Of course not. To borrow a portion of a title from Harold Kushner's best selling book, "Bad Things Happen to Good People." I realize that sometimes life is not fair: babies unfortunately pass away; innocent people are murdered; hurricanes and earthquakes often devastate cities and kill many people. I could go on and on.

I love the quote: "What happens to you in life is 90%; but how you react to it is an important 10%!" What that means is that one's attitude plays a huge difference.

In my opinion, that's the "twist" of "The Secret." Sure, one's thinking is a huge part of life and finding happiness. However, I did not need Harold Kushner to make me realize "bad things happen to good people," (but thanks). The Holocaust was one of the worst events of history; the Viet Nam War brought pain to so many; the destruction of the World Trade Center brought anguish and pain to countless millions. All of these events were terrible. But typhoons and hurricanes occur with regularity; tsunamis and cyclones also cause unbelievable pain and wreckage; wars are with us in every generation and result in so much misery; people who do not smoke get lung cancer. All of these things are terrible experiences. There are terrible events of the past AND the present AND they surely will again be part of our future. Unfortunately, they have been and will be part of our lives -- the bad and the good in our lives.

I believe with the right attitude and thinking a person can not only survive, but also thrive, if not here on earth, than in many people's wonderful memories.

And that is a great twist!

I'm In Some Serious Pain

Nikki, what the fuck ______ ?

Where would you like to spend your retirement?

Away from mean and hateful people, location isn't as important as peace of mind in my old age.

Nikki, what the fuck ______ ?

Who's the most overrated athlete?

What's an athlete?

Nikki, what the fuck ______ ?

If you were offered the job of U.S. president would you take the job?

Nope. Because no matter what you do, Americans are never satisfied. Never. And that's such a burden to carry.

But my 5yo would make a great president because he doesn't give a good shyt about anybody's satisfaction but his own. Nope.

Nikki, what the fuck ______ ?

Do you believe there's intelligent life on other planets?

Yup. <----- And isn't that an unintelligent response? Yup!

Nikki, what the fuck ______ ?

If you could rid the world of one thing, what would it be?


Nikki, what the fuck ______ ?

How much TV do you usually watch in a day?

I don't watch TV.

Nikki, what the fuck ______ ?

You and I wake up in a psychiatric ward together. Using 4 words, what would you say to me? Note: And If you comment, you must copy and ask others, so I may comment on yours as well.. Be a good sport and play along... 4 words isn't easy

You and I wake up in a psychiatric ward together. Using 4 words, what would you say to me? Note: And If you comment, you must copy and ask others, so I may comment on yours as well.. Be a good sport and play along... 4 words isn't easy

Answer here

You and I wake up in a psychiatric ward together. Using 4 words, what would you say to me? Note: And If you comment, you must copy and ask others, so I may comment on yours as well.. Be a good sport and play along... 4 words isn't easy

I look over. Shake my head. And say, "It would be you."

Nikki, what the fuck ______ ?

Wednesday, March 23, 2011

Next Birth (or?) Freedom ~ Mooji

Sound Advice

"Never take my word to be law, always seek your own truth."


MissNikkiAnn's Pearltrees (@dzakyem)

My dear Swiss friend Dzakye referred me to this awesome site that takes your internet experience to a more "visible" level.  Pearltrees is a concept that was destined to be born, giving the user a better idea, through pictures (Pearls) where their interest lie and what ties have been formed within the grand scheme of the intangible abilities of the internet.  But don't take my word on it, go experience it for yourself.  Below is the Pearltree that I am curating.  Enjoy.


Tuesday, March 22, 2011

Thought Provoking

Today I received a question on my Transitioner page (located at:  A Transitioner member asked a question that stuck with me and sent me into a contemplative and meditative mode.  She said:

"Dear Nikki, you speak about your quests in life. Can you say more?"

That simple question resonated to the depths of me.  That simple question has kept me creatively paralyzed for a lifetime.  And ultimately, if I do not seek more to understand that question, I will find my spirit unsettled  again.  Yet again.

As if her question hadn't resonated loudly enough, I was sent the same message through a comment made on an NPR program this afternoon.  The guy said that he's learned a great deal from Thurgood Marshall.  Not because Thurgood was so great but because he was so normal and so human.  He said that Thurgood taught him the two most important questions that one must ask of himself.  I was driving, so I wasn't able to write these questions down, but they went something like...

1.  Do you know what you want out of  life?
2.  Do you know how you can go about making it happen?

To me, it's the same idea as the question that was posed on my Transitioner page.  I know with everything within myself that this question can and will be answered.  And that once I am able to provide an answer, I will feel more at home in the guided steps that I am taking.  It's a question that God has been waiting for me to answer, not for His knowing, but for mine--to strengthen my relationship with The Almighty.

Be well.

Be patient.

Be in the moment.


Fixed My Twitter Button!

Feel free to click on it.

It's over there to the right ------------------>
(You'll have to scroll down to see it!)

Monday, March 21, 2011

Taking Inquires For MissNikkiAnnHelp

MissNikkiAnn has one client opening. Please email inquires to:

"I am here to assist, because it's what I do."

If you're wondering why you or anyone else might need my assistance, just shoot me an e-mail and we can go from there.  The inquire costs you nothing but your time.

And for those who are still confused and resistant to emailing me, more information will follow.

Again, there is only one open client slot, don't be hesitant.

Be well.

Be patient.

Be in the moment.


The Bat-Shit Crazy Daily

Back up and running! Whether you view this as good or bad is beyond my knowledge! I think I like it this way, keeps my ego from being bruised. Ouch!!!!

Sunday, March 20, 2011

Attacks of Fear ~ Mooji

Catch up to this idea. I'll wait. LOL.

Be well.

Be in the moment.


The End To My Good Day

The Farm

The farm was great, Sir and I were sure to check on every animal.  The black goat and Jocelyn the cow were really attracted to Sir today, which tells me that he's getting older and calmer.  I spent my time with the chickens, whom I usually don't communicate with.  But today two seemed to have caught my attention and I practiced my chicken calls, doing so well that I elicited the two chickens' undivided attention.  And the one that had its leg up, on guard, finally put it down and began playfully eying me.

But Sir's calling from his bath.  Must answer.

Be well.

Be in the moment.

Dysautonomia (POTS), Chronic Illness And The GOOD DAYS

MissNikkiAnn is having a GOOD DAY!  Let's all run bat-shit crazy in the streets.  Fuck-yes!!!

Saturday, March 19, 2011

MissNikkiAnn's House Is Open For Business

Writing to let my readers know that I will soon have one client opening.  More information to come on that open slot.

Be well.

Waiting Through The Mini Stroke

I am pretty sure I am suffering a mini stroke again. It's been a year since my last one.

Took my Bayer aspirin.

"Now what?" you may be asking.



The strokes don't last long enough.

In the past I'd have mom bring me to the emergency room. But ask any Dysautonomia patient about E.R. visits and you'll quickly learn that they are more of a harm than help to us. The average E.R. doctor has never heard of Dysautonomia and doesn't know what to do with us Dysautonomianites when we showup at their door. Even more, some despise us because we represent their worst fear: an undiagnosable patient. They are often rude to us, trying to convince us that we are perfectly fine, in order to save face.

But one thing perplexes them. As soon as we go to stand up and our pressure plummets and heartbeat races and we faint...they are forced to run a battery of tests that lead them back to where they started: Freshman in medical school...confused...afraid to admit that they just don't have an answer.

Now you've wasted an entire day and night, and you go home kicking yourself because you already knew the outcome; you've lived it too many times before.  And now the mini stroke has passed. Gone undocumented. Gone untested. All because no one took you seriously.

The only problem, as one of my neurologist told me almost two years ago:

"Mini strokes are basically harmless. That is...until you've had one too many."

And how am I to gauge if/when I've had one too many?

I can't.
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Videoshoot : Abege "I like it" @ Porto, Portugal. 2007 @kaysha

Kaysha (@kaysha on Twitter) is a longtime Twitter friend.  He is passionate and talented beyond my comprehension.  Here's some footage he'd taken during a recent video shoot.  I love the fact that his fans get to keep up with not only his work but also his creative process through the makings of his very own intimate, self-made videos.


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Friday, March 18, 2011


I understand her frustration. Try to watch the entire video, there's a part where she begins to cry. That moment gripped me, her vulnerability spoke to me. My gosh!

Wednesday, March 16, 2011

I Am Here

Just finished doing my internet rounds, from one intriguing site to the next.

Just thought it only smart to drop-in my own site and see how things are going.


They're going.

The page is still here.

Be well.

Sunday, March 06, 2011

Keeping You Up To Speed…

I have a lot going on at once.  Since I am finally at the end of a month-long Dysautonomia flare, I am trying to play catch-up.  In addition to playing catch-up, with the help of my psychiatrist, whom I adore as a human being, I am trying to implement some activities that will help me work towards my goal of creating cash flow on my own.  I have not yet been approved for SSI or Disability, so my income is ineffectively $0.00 per hour, which stings.  And sucks. 

As I am learning to live and work around my disability, we (my psychiatrist and I) are trying to figure out how I can utilize my talents from my bed, in the lying flat position, in order to make a livable living with or without the aid of SSI/Disability.  As I’ve told her, eventually (if I am awarded money from SSI/Disability) I want to be financially independent of those systems sooner than later.  Just as a blind person, or deaf or mentally handicapped person can generate income despite their disabilities, I too feel compelled to do the same.  So our brainstorming has led to my attempting writing by voice recognition applications that I use while I’m too sick to be upright.  It’s a bit daunting, but remember how daunting text messaging used to be before QWERTY pads?  Same thing.

This morning I got an email letting me know that I’ve been accepted as the group leader of MDJunction’s Non-Familial Dysautonomia Forum.  I feel honored and excited about the endeavor, and am looking forward to advocating for Non-Familial Dysautonomia and chronic illness sufferers in general.  I’ve also been using my YouTube vlog as an advocacy tool by making my own videos and connecting with other Dysautonomia/POTS (Postural Orthostatic Tachycardia Syndrome, a form of Dysautonomia that I have) patients.

And there’s so much more, but right now I am in so much pain and need to go handle that and Sir at the same time.  One thing I will say about Sir is that I am so proud of him.  He is crazy as hell, but he’s doing such a great job in kindergarten, and I am thoroughly enjoying watching and listening to him read; which I think has been my favorite part of his kindergarten experience.  Yay for reading!  I heart books.

Be well.


*Photo--Sir’s first day of kindergarten, Fall 2010


Raw Foods Journal Entry #2

The journal entry can be found at this link: