Watch "Between 2 Worlds (preview)" on YouTube
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Thursday, March 29, 2012
Tuesday, March 27, 2012
Church Kidnaps Teens, Holds Them At Gunpoint, For 'Learning Exercise'
So...this didn't go too well?
*insert my blank stare*
*insert my blank stare*
Monday, March 26, 2012
My Creative and Meditative Truth
Today I listened to this while doing my daily writing. I often listen to Mooji and write at the same time. In the end, the writing becomes more of a releasing-until-I am-facing-the-void process, than one where I am actively seeking some self-imposed and forced creative outcome. Because that's too easy.
We are creatures.
We create.
It's just that some do so without recognizing it for the innate/unavoidable thing that it is.
So when writing turns into more of a meditative state, it feels like a such blessing.
~MissNikkiAnn
We are creatures.
We create.
It's just that some do so without recognizing it for the innate/unavoidable thing that it is.
So when writing turns into more of a meditative state, it feels like a such blessing.
~MissNikkiAnn
Saturday, March 24, 2012
What Dysautonomia Looks Like
I know this wonderful woman. And guess what? She is a medical DOCTOR. And guess what? Despite that fact, she received the same bad medical and psychological treatment that most dysautonomics face on their journey. Sad that a documented illness is unknown by the majority of those in the healthcare field. Help us to end the ignorance. Many of us are dying while doctors sit around scratching their heads, or more commonly, throwing in the towel. Guess what Elvis died of? He had dysautonomia and died from a typical complication that goes with it. You can also add Tammy Wynette to that list and most recently Brittney Murphy. And then there are my internet friends: gone. Help us.
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Friday, March 23, 2012
Thursday, March 22, 2012
Chronic Illness: The Truth Behind The Smiles
This is my story, too. And the story of my friends.
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Wednesday, March 21, 2012
Tuesday, March 20, 2012
Sex After Kids: a possible movie in the making...
I like the idea behind this film. And if I had money (I don't), I'd use it to back this film. But maybe you have money (I don't). And if you do have money (I don't), I think it would be a worthwhile investment for you, since you have money (I don't). Cool.
View the trailer...
Monday, March 19, 2012
What The Hell Is POTS? by Twitter's @eklayre
Honest to God, this happens to me all the time. ALL THE TIME.
"MNA: The Voices of Dysautonomia" newsletter, 3rd issue...
Is available...
Feel free to subscribe...
"Be good.
Be patient.
Be in the moment.
Be subscribed?"
~MissNikkiAnn (MNA), writer...dysautonomia patient...listening ear
Feel free to subscribe...
"Be good.
Be patient.
Be in the moment.
Be subscribed?"
~MissNikkiAnn (MNA), writer...dysautonomia patient...listening ear
Thursday, March 15, 2012
Looks Around Her Blog...
Life is strange. I never know why most of my visitors are visiting my blog. I do know I have a handful who have been reading it since 2006, beyond that, the reasoning behind the things my viewers and subscribers click on are outside of my understanding. It would be hard for me to take a whole lot of credit for most of what is happening on this blog in the last year or two; things on the interwebs are odd: lots of re-blogging/re-vlogging/re-posting/rehashing of information. And I do not want to give the wrong impression; I am not against any of these things, and do them simply because I, too, enjoy doing so. But the fact is that my enjoyment of it has grown my "viewership," which is totally different than readership.
See, I go to people's blogs to read, not really to view vlogs--I save that experience for YouTube, which I am on lots. But blogs I am fond of because of the fact that I get "to read," and have always enjoyed doing so. I have a Tumblr, but find it hard to keep up there because it is mostly about rehashing (which is fun!) pictures. After I've had my fill of food porn and cute animals, my interest wanes and I find myself checking my email for updates from people's blogs or hitting up Twitter or YouTube for more personable exchanges and intimate world news.
And that's all any of it is: exchange.
And like with anything else we humans enjoy, we all have our preferences. And if that preference leads someone to my page, then I am willing to roll out the red carpet.
So, hello to my newer "viewers" and my throw-back readers!
Welcome to MissNikkiAnn's House!
Wednesday, March 14, 2012
Tuesday, March 13, 2012
Terence McKenna: Open Doors for Artists
I wish he were still alive.
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Monday, March 12, 2012
Friday, March 09, 2012
MNA: The Voices of Dysautonomia (newsletter, 2nd issue)
The second issue is now available, please enter your email to subscribe or visit the following link for more information: https://tinyletter.com/missnikkiann.
*FYI: If you do subscribe, be sure to check your email's SPAM folder, as the newsletter may be dumped there by your email provider.
Monday, March 05, 2012
Wednesday, February 29, 2012
MissNikkiAnn’s @Klout: FOX VIP Swag
I must admit, because of this perk, I became a “New Girl” sitcom fan. I am not a television watcher, and would have never known about this show without Klout and FOX VIP bringing the experience right to me. Now I Tivo it and transfer the show to my laptop to watch at my leisure.
And the best part was receiving freebies throughout the Perk. My favorite was the “New Girl” swag, which consisted of a t-shirt, fake nerdy glasses and a little carrying tote that caught the eye of many people this past summer (as did the shirt)—go figure!
These are pictures from my FOX VIP Klout Perk.
MNA: The Voices of Dysautonomia Newsletter
Subscribe to MNA: The Voices of Dysautonomia
Or...go to http://tinyletter.com/MissNikkiAnn for more information.
Huh? No Pink Light? But it's my favorite color!
Watch "There is no pink light" on YouTube
What I love most (more than my own son!) does not exist. Now that's some bullshyt!
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How Far Away Is Tomorrow? Let's See!
Watch "Distance and Special Relativity: How far away is tomorrow?" on YouTube
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What Are Leap Years?
Have a look and listen! Don't worry, it's short, packed with scientific information, but right to the point. Straight. No chaser.
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Sunday, February 26, 2012
"MNA: The Voices of Dysautonomia" Newsletter Is Now Available
For more information go to: http://tinyletter.com/MissNikkiAnn.
Or...simply submit your email to begin your subscription!
Thursday, February 23, 2012
Dysautonomia Book... "No More Tears" Reading I: Author Note & Author's Thanksgiving (book by @DysautonomiaMD)
A book written for fellow dysautonomics, by a doctor living with dysautonomia.
Monday, February 20, 2012
Terence McKenna and Robert Anton Wilson on Jumping Jesus and Novelty
CLICK TO Watch "Robert Anton Wilson & Terence McKenna - Jumping Jesus Phenomenon & Novelty Theory" on YouTube
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Sunday, February 19, 2012
Friday, February 17, 2012
MissNikkiAnn a.k.a. MNA...Catchup! (@dzakyem)
Dzakye is a dear friend of mine. His thoughtfulness brings delight to my heart and laughter to my failing body. Our friendship is a representation of a higher potential for technology and humane communication across invisible lines and barriers. A Swiss interacting with an African American... There is no boundary nor distance that love cannot overcome.
"Be good.
Be patient.
Be in the moment.
Be in possession of an awesome Swiss friend."
~MNA
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The Misadventure of MNA: I Hate Hospitals
I spend way too much time at hospitals and doctor appointments. Tuesday through Friday are designated hospital and doctor days. Thursdays I am in the hospital all day. Tuesdays are ALWAYS double-booked with doctor appointments; and so are half of my Wednesdays. So imagine my horror yesterday when I was in the hospital for my weekly infusion, only to wake from a wee nap to find out that I was being carted over to the emergency room.
From what I understand, my nurse got nervous after having given me a big gallon enema that NEVER came out. I am used to enemas entering into the land of no return; I'd told my doctors and nurses about how, when I do them at home, they NEVER come out, and that if the do, it'll be 24-hours later. I guessed no one believed me...so they panicked when witnessing it happen.
In the emergency room, I was given another bottle of magnesium citrate (cause I'd already had my two helpings of Miralax that morning, and my other helping of an entire bottle of magnesium citrate the day before. I've been alternating the two laxatives for two weeks without relief.) and another gallon enema. Guess what? No shit. And by this point I'm getting sicker and sicker because I was in need of the infusion that had ended abruptly.
Two doctors wanted me admitted. Another doctor was a straight ass. Guess who got to assume power over the situation? The ass.
I will say no more.
"Be good.
Be patient.
Be in the moment.
Don't Be An Ass."
Cordially,
MissNikkiAnn
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Saturday, February 11, 2012
We Are All Waiting, Too
A long sigh...
All I know is that she finally exhaled.
And one day each one of us will follow.
~MissNikkiAnn
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Damn Quotable
Four simple words can say so much...
"Your government is stupid." ~Chip Tatum
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Friday, February 10, 2012
Anonymous: Message to the State of Israel
Click to watch "Anonymous - Message To The State of Israel" on YouTube
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Tuesday, February 07, 2012
"Momfidential: The Jamaican Nanny Debate" by @SaraJBenincasa
I needed this laugh. Sara Benincasa, folks! Sara, freaking, Benincasa!
Monday, February 06, 2012
Wednesday, February 01, 2012
Tuesday, January 31, 2012
Downton Abbey, Season 2: Episode 1
I forgot to remind you guys that Downton Abbey is back!
Here's Episode 1 of Season 2. *Late, but still ripe for the picking!
Watch Downton Abbey, Season 2: Ep. 1 on PBS. See more from Masterpiece.
Monday, January 30, 2012
Sunday, January 29, 2012
Shot Taken at Occupy Oakland #oo
Here's the original link: http://twitpic.com/8d0ykv
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L.A. Noire for @holycowirock @SusanJMinTN
Yup...I suck! But I refuse to let this game get the best of me. I figure that by putting in 15 minutes (or less, knowing me and my symptoms) a day, I will slowly-but-surely get better. Or...just get fed the frock up and give up. Only time...
Saturday, January 28, 2012
This Could Be Your Last Life by Mooji
I needed to be reminded of this during this period of being ill. I thought I'd share, just in case anyone else is in need of this reminder.
Friday, January 27, 2012
Products MissNikkiAnn Likes: 3D Star Theater from Uncle Milton
Sir (my 6-year-old son) has this. We're having a lot of fun with it.
Wednesday, January 25, 2012
Tuesday, January 24, 2012
Saturday, January 21, 2012
L.A. Noire Beatdown?
This game is kicking my arse, even Sir plays it better than I; I should stick with The Sims?
Friday, January 20, 2012
Fair Play?
This is what I am up to...
While Dysautonima is not playing fair.
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Monday, January 09, 2012
Monday, January 02, 2012
"Is MY cancer different?" (@ismycancerdiff)
Being a woman whose mother (and my mother's sister) is a breast cancer survivor, and being that cancer has taken two of my father's sisters and recently a beloved uncle (who was also Sir's godfather), I know just how important this question is. For those struggling with cancer personally or by way of caring about someone who has it, this site is a great resource for answering the question, which goes without saying, but I will answer it, emphatically...
You can also find www.IsMyCancerDifferent.com on Twitter (http://twitter.com/#!/ismycancerdiff).
Sunday, January 01, 2012
Thursday, December 29, 2011
Friday, December 23, 2011
Throwback: DJ Rogers - Doggie Style, Above The Rim Soundtrack
This was/IS my shyt!
Some dude on YouTube said he had sex with his high school math teacher to this song back in the day! Whoa!
Enjoy.
And...
Bounce wit it!
Thursday, December 22, 2011
Sunday, December 18, 2011
Elliott Krane: The Mystery of Pain as a Disease
My doctor played this video for me during my appointment this week, and I thought I'd share it with you. I have some of the most amazing doctors (and I have a couple of the "other kind" as well).
Friday, December 16, 2011
Thursday, December 08, 2011
@YouTube, You Disappoint Me
Why must we as consumers suffer with the unethical ways in which Big Business operates? Why do we sit by and suffer quietly. REVOLT!
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Wednesday, December 07, 2011
David Icke: Consciouness DNA
Don't "think" on it, let your intuition guide you on the following journey of words. ~MissNikkiAnn
Saturday, December 03, 2011
Friday, December 02, 2011
@OccupyHartford's Platform and Demands meeting this Sunday 12/4/2011
The Platform and Demands meeting will be having our third meeting this Sunday from 2-5 PM at the Kabbalah House located at 1023 Albany Ave in Hartford’s historic North end . Plenty of on-street parking available. We warmly welcome your participation and efforts toward this important project.
Currently, the working list is…
- End U.S of wars of aggression and occupation and bring the war dollars home now.
- Make the corporations and the rich pay their fair and just share of taxes.
- Quality housing, food, healthcare, education, childcare, and a basic income are lifelong human rights for all.
- A broad employment program that recognizes everyone’s right to meaningful, socially, and environmentally beneficial work at a living wage, while prioritizing the needs of socially and economically marginalized groups in the local community.
- Adequately funded, compassionate empowering, culturally and situational appropriate rehabilitation and education outreach services for victims of human trafficking, homelessness, sexual exploitation, prostitution, drug addiction, domestic violence, child abuse, and other social ills.
Click the following link for more details: Platform and Demands meeting this Sunday 12/4/2011
Wednesday, November 30, 2011
Tuesday, November 29, 2011
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