Showing posts with label NIK PICS (self-taken pictures). Show all posts
Showing posts with label NIK PICS (self-taken pictures). Show all posts

Tuesday, July 09, 2013

BE-ing Grounded

See the trend but do not panic.  
I repeat:
Do Not Panic.
You have more time than they say you have.
News machines are contagious.
Research.
Research the contagion.
Be sure that the contagious contagion is worth the drama.
You have time to window shop.
Most of your life is--and will be--spent waiting.
Just because something is repeated and hammered to death every minute and every second of our waking day does not mean the medium is magically moving any faster. 
It is perfectly safe to consume less frequently--or even abandon the vehicle.
Don't forget to tuck, drop and roll.
Time.
You do have it.
Time.
It is not lost.
Time.
It is not wasted.
But sanity...
Drink it up before the expiration date.
OR
Drink it after the expiration date.

~MNA


Wednesday, May 22, 2013

Ranted Ramblings on Disco Piss

The hamster is hiding in one of her loops.  I haven't known her long, but so far she seems to go there when Sir and I have frustrated the shit out of her.  I mean, I have good reason.  If she'd just stop shitting and pissing in her wheel then I could spend less money and time poking at her and trying to potty train a thing that  likes to piss, shit and run as a bathroom break.



And then my POTS (Postural Orthostatic Tachycardia Syndrome) symptoms have arrived right on schedule to remind me why I hate spring and friggin' summer, I am bedridden and my world is like an spinning disco ball with hints of some hallucinogenic hippie drug that makes spinning in circles after a long day AND night of drinking look like its bitch--I am up at 2:30 in the morning feeling hungover without the prerequisite of partying and drinking.

Did I mention that racism is rampant?

Tuesday, May 21, 2013

A Story: Epipen and Nasty Nan

found myself alone with an amazing from scratch spaghetti with meat sauce by one of my favorite family-owned restaurants.  this is new england, so great italian food is not hard to come by (and i ain't talking processed olive garden shit).  this was my second day with the same dish.  the day before the outside and inside of my mouth began to set on fire from the onions.  but i wanted it so bad that i kept going.

i am highly allergic to onions, scallions and garlic.  highly.

i am also prone to being an idiot.

but how can one live in a highly italian populated area and not eat onions and garlic?  it is near impossible.

a little over a year ago i had to epipen myself after coming into contact with onions.  let me be clear: i did not even consume the onions, mom was cooking with them on the OTHER SIDE of the house.  my throat began to close up...what a horror

now here we are.  a little over a year later.  i HAD been diligent about even being near onions/scallions/garlic.

this time, not only did my mouth and esophagus get set on fire but my entire body felt as if it were being cremated.

then my throat began to close up.

i panicked.

grabbed 2 benadryls.

and refused to epipen (i have heart issues and the epipen's epinephrine causes my heart too many issues).

but...it kept closing.

i panicked even more.

tried to find the epipen in my purse.  couldn't.

dialed my mom while the 8-year-old watched me in horror as i flung all the shit from my purse onto the floor.

found it.

stabbed myself with it.

cried like an idiot who had forgotten that she'd CHOSEN to put her body at risk.

popped another benadryl and then some clonazepam, propanolol and emergency inhaler.  yelled at the 8-year-old to rub liquid benadryl on my raw back.

waited and sat in front of a fan to cool my burning body down.

time passed.

i survived...

and noted that Nasty Nancy (nickname i gave to our new pet dwarf hamster whose real name is Ala Luv Cake) slept through the entire episode--my screaming, crying and everything.



then the 8-year-old gave me a lecture.



then mom gave me a lecture.

i did not give myself a lecture.

later that night, i gave Nasty Nan (short for her Nasty Nancy nickname (yes, i am an idiot)) a lecture about not having my back and sleeping through my hellish episode.

Nasty Nan looked at me.  sniffed the finger that i was pointing at her cage.  and did what Nasty Nan does: got in her wheel (which she truly thinks is her bathroom) and shat and pissed in it while running to nowhere.

enough.

wait...did i mention that i think Katt Williams is a genius?

i know some of you will have to google that name.




Monday, May 20, 2013

Freestyle Ramblings: I Could Almost Cry

Finding my way out of a hole.  Crazy rabbit hole.  A rabbit hole that seems to be turning into a circular mess.  Sometimes you have to let life be a mess.  No....didn't like the sound of that, or the false-hood of it.  Life is a chaotic mess.  Our world is.  Space is.  Organized chaos?  Coming together for a mashup of some amazing moments.  Mashup.  Circular mashup.  Love it.  Then hate it.  Be afraid of it.  Or go with it.  Really one has to go with it.  The only other combination would be going with it while utterly afraid of it.  Laws prevent too many other options.  Chaotic Laws.  My being as a lawful body.  Humans as a lawless set.  Mother Earth as an enabler.

April 2012

Monday, July 30, 2012

Sleep? Study

You know just about how much sleep I was able to get with all of this going on.

Published with Blogger-droid v2.0.6

Saturday, April 21, 2012

My @Klout Perk: Go Red For Women

Miss Nikki Ann
Miss Nikki Ann rated a perk from American Heart Association
1
2
3
4
5
“As a woman with heart issues (Cardiogenic Syncope and Postural Orthostatic Tachycardia Syndrome), I love wearing my pin to support the cause.”

Wednesday, February 29, 2012

MissNikkiAnn’s @Klout: FOX VIP Swag

I must admit, because of this perk, I became a “New Girl” sitcom fan.  I am not a television watcher, and would have never known about this show without Klout and FOX VIP bringing the experience right to me.  Now I Tivo it and transfer the show to my laptop to watch at my leisure.

And the best part was receiving freebies throughout the Perk.  My favorite was the “New Girl” swag, which consisted of a t-shirt, fake nerdy glasses and a little carrying tote that caught the eye of many people this past summer (as did the shirt)—go figure!

These are pictures from my FOX VIP Klout Perk. 

IMG_20111006_202827IMG_20111006_202821

IMG_20111006_202921IMG_20111006_202932

IMG_20111006_202937IMG_20111006_202928

Saturday, November 26, 2011

Dysautonomia Awareness

I Am.
That I Am is not sick.
My mind.
My mind and body.
My mind and body, that they are, are sick.

~MissNikkiAnn, Fellow Dysautonomic

Thursday, September 29, 2011

Hospital Day 09292011


Funny that I have to attach an actual date to my hospital days, which means that I am here enough (every Thursday for infusions) to where I need to be specific about the date.

Yeah...I put a head covering on, my nurse just passed and asked it something had changed.  Anyway, in this picture I am on the phone with my mom.  But oftentimes, I have to handle business from my hospital room.  As a matter of fact, I am about to call my primary care, so that he can edit some of my prescriptions that I receive during my infusion sessions.  The newer prescriptions say to take by mouth, but since I am already hooked up to the IV for my infusion, my nurse might as well administer the medications through the IV (Which we usually do, but some how it all got mixed up in the new script.).

And I am not gonna complain about already being ready to go home for the day (got here at 6:45 AM and won't leave until around 4 PM), just gonna do my time and not dwell on how wonderful it is when I am home in my own bed.  Wait...said I wasn't gonna complain.  My bad.  Shyt happens.

And in the picture above that is me mouthing "thank you" to everyone who has sent me emails (you can, too:  missnikkiannhelp@gmail.com).  So many people have reached out to share their stories with me, and I am grateful to have such great readers.

When I started this blog in 2005, I could not have imagined that I would still be posting to it in 2011.  And I never would have imagined that I would have a lasting viewership.  And I surely could not have fathomed being chronically ill.  But here I am.  In the moment.  Being amazed and blessed by life's journey.

"Be good.
Be patient.
Be in the moment.
And thank you for being on this ride with me."
~MissNikkiAnn


Sunday, February 13, 2011

Tuesday, September 15, 2009

(pic) Sir-Another successful Montessori dropoff!

Now I just have to wait the hour out. Told him that if he has a good "day" (a whole friggin hour!) that we'd go to McDonalds and play on the playscape.
 
His Spanish speaking teacher escorted him from the car today. At this particular school, each classroom has a Spanish speaking teacher who only speaks Spanish to the kids. Even when she escorted him from the car, she only spoke Spanish. And this is when I get to use my Spanish skills that I gained from studying in Costa Rica, conversing with her in Spanish makes for a richer experience for Sir. At least I'm hoping that it does! LOL!
 
MISS NIKKI ANN
--This email was sent from my Helio Ocean cellphone.

Posted via email from missnikkiann's posterous

(pic) I'm thinking about taking this class at the library, sharpen my skills a bit!

The Class: Hand Mending Made Easy
 
And a sewing kit for ech participant will be provided. Not that I need one, but I love freebies. The class is only one hour. So I'm tryna figure out how much they can cover in that small amount of time. Who knows! But I'll be placing this free class on my schedule.
 
I love to get out and do things in my town. Especially events where I can almost guarantee that the atendees will be elderly. I love to listen to their unabashed wisdom that spews from their mouths without them even knowing it! LOL!
 
MISS NIKKI ANN
--This email was sent from my Helio Ocean cellphone.

Posted via email from missnikkiann's posterous