Outside. Goosebumps. She says, "Whether people know it or not, fall is in the air." She's right--even the birds sing its praises this morning. The worms will be coming closer and closer to the earth's surface. Fall is coming. Harvest is coming to humanity, closer and closer to the earth's surface.
Crisp air blessing my lungs.
Fresh dew wetting my legs as I walk through the grass.
And that Canadian breeze whipping through New England.
Goosebumps.
Sunday, July 31, 2011
Parents With Dysautonomia
A dear friend of mine recently left me the following post on MDJunction. She is such a continual source of encouragement for me and other dysautonomic parents. I share it with you so that you may also be encourage, whether you have dysautonomia or not--we are all living a human experience with innate issues.
"Thanks so much for taking the time to reply even though you are feeling so ill. I am so sorry hear things are really rough all the way around. It must be extremely difficult trying to make all these important decisions with feeling so ill. We have as well had to make financial decisions as I cannot work...at times this week I just wanted to crawl into a dark hole because I felt my mind just could not focus on another thing.I have to constantly remind myself he has never let me down and know matter how bad things look to not focus on what is seen but on what is unseen. 2 Corinthians 4 16-18 has been a comfort to me lately. Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal. This has been a good reminder for me 
I will be praying strong for you Nikki (I hope you don't mind if I call you Nikki, I have been meaning to ask you this.)
Sending hugs and prayers your way, Jan xo"
The original post may be found at the following link:
Parents With Dysautonomia (page 2).
"Be good.
Be patient.
Be in the moment."~MissNikkiAnn
Optical Light Sensitivity - Irlen Syndrome
I totally relate to this guy's issues. It's what I endure everyday but have a hard time relaying it to others; so I thought I'd share, being that he does a great job of explaining.
@Digitwirl: The Weekly Web Show That Makes Tech Work For You
Me likes:
Also find Digitwirl on Twitter: @digitwirl
Saturday, July 30, 2011
Friday, July 29, 2011
New Time, New Adventure
I'm on a new adventure. And when using the word "adventure," there is always the sense of the unknown lingering about. I try not to feel one way or the other, just centered in each moment that I am given, knowing that my moments won't last forever. And with things being the way the are with my body, I am forced to move at a snail's pace, the difference is that I've made peace with it and am learning not to be consumed by what others may (or may not) be thinking about the way I must live my life. Overall, I doubt it's an existence that would satisfy the average First-Worlders' need for extravagance and privies, but in the chronic illness and disability world, my life ain't so bad.
"Be good.
Be patient.
Be in the moment."
~MissNikkiAnn
"Be good.
Be patient.
Be in the moment."
~MissNikkiAnn
Published with Blogger-droid v1.7.4
Thursday, July 28, 2011
Wednesday, July 27, 2011
Caravan Adventures & HIIIIII by @MaricsBulletin
I love this personal adventure story told by my POTS (Postural Orthostatic Tachycardia Syndrome) friend Maricia (@MarcisBulletin on Twitter). Reminded me of my 20s!
Sunday, July 24, 2011
Judgement Day by @darksempyrean
This is my YouTube (http://www.youtube.com/user/TheDarksEmpyrean) and Twitter (http://twitter.com/#!/darksempyrean) friend Al. He's so talented, great vocals and theatrics.
WARNING: This scared the shyt out of me but was worth the watch!
Wednesday, July 13, 2011
Revamp
The same way Blogger has revamped it's face, I am attempting to do the same with my "faces" around the web. Things in the world are ever-changing, and since I am currently of this world, I am changing with it. Gotta take a better look and stock of what I have going on on the interwebs. It shouldn't take much longer, as I've been at it for a while anyway. There are so many tools and vehicles; and you can find that, once you've tested lots of them, your efforts begin to be a little scattered, causing confusion for your audience.
I doubt I'll close any of my pages, I just won't be directing my newer viewers to them. If a viewer is interested in all the work I've done on the internet since 2005 (I've been on longer than that but feel my meatier work started in 2005), they can google "MissNikkiAnn" and read/see my evolution.
I hope all are well. And if not, I pray that you find peace in the midst of the storms of life.
"Be good.
Be patient.
Be in the moment."
~MissNikkiAnn
I doubt I'll close any of my pages, I just won't be directing my newer viewers to them. If a viewer is interested in all the work I've done on the internet since 2005 (I've been on longer than that but feel my meatier work started in 2005), they can google "MissNikkiAnn" and read/see my evolution.
I hope all are well. And if not, I pray that you find peace in the midst of the storms of life.
"Be good.
Be patient.
Be in the moment."
~MissNikkiAnn
Published with Blogger-droid v1.7.4
Monday, July 11, 2011
Sunday, July 10, 2011
It Is I...
It's been a struggle today. Hell, it's always a struggle. I stayed in my pajamas all day. Tweeted with some tweeps. Google+'d with some old Twitter and Seesmic folk. Listened to NPR. Yelled at Sir. Yelled at Sir some more. Toasted marshmallows in the backyard, while still wearing those pajamas. Did 6 puzzles with Sir. Played Operation and Bed Bugs with Sir. Watched some YouTube videos. Made a YouTube video. Started my Pinterest board. Curated my Pearltrees. Took my Dailymughshot shot. Had my regular coffee. Had my decaf coffee. Listened to my one voicemail. And I think I am about to yell at Sir again. This means I've basically come full circle. Wait...I just got an email. Let's see... *reading email* Oh...how nice...someone on Twitter retweeted one of my tweets and my email felt that I needed to know. Yes, email has feelings.
Now yelling at Sir...
"Be good.
Be patient.
Be in the moment."
~MissNikkiAnn
Now yelling at Sir...
"Be good.
Be patient.
Be in the moment."
~MissNikkiAnn
Wednesday, July 06, 2011
Monday, July 04, 2011
Sunday, July 03, 2011
WOW! Motorcyclist Dies On Ride Protesting Helmet Law In New York
I just had to post this!
Motorcyclist Dies On Ride Protesting Helmet Law In New York
"ONONDAGA, N.Y. -- Police say a motorcyclist participating in a protest ride against helmet laws in upstate New York died after he flipped over the bike's handlebars and hit his head on the pavement.
The accident happened Saturday afternoon in the town of Onondaga, in central New York near Syracuse.
State troopers tell The Post-Standard of Syracuse that 55-year-old Philip A. Contos of Parish, N.Y., was driving a 1983 Harley Davidson with a group of bikers who were protesting helmet laws by not wearing helmets.
Troopers say Contos hit his brakes and the motorcycle fishtailed. The bike spun out of control, and Contos toppled over the handlebars. He was pronounced dead at a hospital.
Troopers say Contos would have likely survived if he had been wearing a helmet.
___
Array of Huffingtonpost.com"
Friday, July 01, 2011
Derek Overbey's (@doverbEy): What’s the “Buzz” About Google+
Click the link to read the article:
What’s the “Buzz” About Google+ | A Bird's Eye View
What’s the “Buzz” About Google+ | A Bird's Eye View
@NadiaBodkin Is Looking for Sponsors As She Vies for Miss NJ USA
My friend Nadia is running for Miss New Jersey USA. She has Ehler's Danlos Syndrome and wants to use the pageant as a platform for spreading awareness of this illness that also falls within the Dysautonomia family. This means that in return for helping her, you'd be helping me and other autonomic nervous system failure patients.
Thursday, June 30, 2011
Sunday, June 26, 2011
Friday, June 24, 2011
Thursday, June 23, 2011
A Higher Conscious Conversation
I enjoy these types of conversations. This excerpt is from the film My Dinner With Andre.
DJ Wally Wall - Billboard Top 10 - June 2011 (@darksempyrean)
A video by my Twitter and YouTube friend @darksempyrean. I love this guy. If you're looking for a quick laugh, this is the one to watch.
Wednesday, June 22, 2011
Tuesday, June 21, 2011
Interview w/ Gini Dietrich CEO Armant Dietrich SpinSucks 06/21 by StevenStreight | Blog Talk Radio
A great interview by my Twitter friend @vaspersthegrate (Steven Streight).
Interview w/ Gini Dietrich CEO Armant Dietrich SpinSucks 06/21 by StevenStreight | Blog Talk Radio
Listen to internet radio with StevenStreight on Blog Talk Radio
Interview w/ Gini Dietrich CEO Armant Dietrich SpinSucks 06/21 by StevenStreight | Blog Talk Radio
Sunday, June 19, 2011
Saturday, June 18, 2011
Breast Cancer? But Doctor....I hate pink!: I owe you an apology
*Click the link to be taken to the author's full post.
Breast Cancer? But Doctor....I hate pink!: I owe you an apology: "I started this blog a couple of years ago for a few reasons. The first has to do with sleep, a recurring theme 'round these parts. I have ..."
Breast Cancer? But Doctor....I hate pink!: I owe you an apology: "I started this blog a couple of years ago for a few reasons. The first has to do with sleep, a recurring theme 'round these parts. I have ..."
What do you do when you're having trouble falling asleep at night?
Listen to "Arms of Morpheus," a voice-led, nighttime meditation track.
what are your plans for summer 2011 (mass question to all the people i follow! aka everyone on my facebook! xo)
Lots of doctor appointments and trying to keep my 6-year-old busy.
Thursday, June 16, 2011
What's the last thing that you laughed about?
Comedian @SaraJBenincasa's @YouTube video where she plays Michelle Bachmann and another about Sara's agoraphobia that led to her peeing in bowls because she was too afraid to go to the bathroom--unless she had to shyt. LMAO about it right now, actually!
Tuesday, June 14, 2011
well at least your with your loved ones which is a blessing from God and so do you like to give advice
I'm just a really good listener and like hearing people's stories. But I do find that people tend to ask me for advice, which I'm okay with.
5 Things My World Showed Me Today
 |
| What... |
 |
| The... |
 |
| Hell? |
- People have a sound and solid dislike for the Nestle Company.
- Google is soooo pissed at China for invading its Gmail accounts.
- The United States and China will not be "true" friends within my lifetime.
- The Chinese government still hates its Chinese Christians.
- NPR felt the need to do a segment on Spiderman the musical. And I think that's bat-shit crazy. *shrugs* But I still like NPR.
Monday, June 13, 2011
*muah* kisses back so hows your day been
It's been a long and frustrating day. But...it's okay. I am alive and with my loved ones. And this is what matters most.
What's your honest opinion of me? (if your brave you'll press ask followers
That you're smart, sexy, witty, bat-shit crazy and way talented. Oh wait...and you're a troublemaker! :-)
PSP Lego Pirates of the Caribbean and SONY Issues
This is the newest PSP game that Sir wants. But right now...right now...I am so pissed off with SONY. **insert explicit words here** I'm not just upset about the techies who jacked SONY, I'm upset that you still can't get on the site to see your account. How friggin' long will it take? And all the while, I see them out and about in techie land promoting new shyt! Screw your new shyt, SONY! Fix the shyt you own that ain't working, gosh-dernit!!!! And you no longer even mention on your blog or on Twitter that users can't access their accounts. It's like you're trying to paint a picture that everything is back to normal, just to keep your stocks steady. What the heck, SONY!? Then you GIVE us free games that our gaming systems can't access because we can't get into your system! And just to think, I was hoping to one day invest in a PS3 for my mom (yeah, my mom!). I don't even trust y'all anymore! NOPE.
Sunday, June 12, 2011
Str8 Sounds w/ @vaspersthegrate
Music by my Twitter friend @vaspersthegrate.
FYI: Pay attention to the lyrics. If you click the "options" button, you will be able to read the lyrics.
what do you love about a man
When he proves himself to be loving, respectful, giving (and humble enough to receive), smart and hardworking over and over again through the years. Which means you've gotta know him long enough for this to happen. Longevity. In it for the long haul.
Friday, June 10, 2011
Thanks For Nothing, Governor Malloy
So it's official. The legislation was passed and now Connecticut residents have been cut by Amazon from the Amazon Associates Program (a service I use here on my blog--or USED to use). Basically, it involves a sales tax provision that's been instated within the new budget. Here's Amazon's exact wording on th issue:
"It specifically imposes the collection of taxes from consumers on sales by online retailers - including but not limited to those referred by Connecticut-based affiliates like you - even if those retailers have no physical presence in the state."
But that wasn't my favorite part of the email. Here goes...
"We opposed this new tax law because it is unconstitutional and counterproductive."
Yes, Amazon, ya' gotta call it a duck if it quacks. And this thing is quacking really loud. Further more...
"It was supported by big-box retailers, most of which are based outside Connecticut, that seek to harm the affiliate advertising programs of their competitors. Similar legislation in other states has led to job and income losses, and little, if any, new tax revenue."
When I first heard about the possibility of a new tax law, I didn't believe it'd actually get approval and pass. But just like other crap going on in America lately, it seems that we ought to get used to expecting the unexpected to transpire with great approval and mobility. And it's a shame. Welcome to American Democracy.
Be good.
Be patient.
Be in the moment.
Be taxed outta your mind!
~MissNikkiAnn
"It specifically imposes the collection of taxes from consumers on sales by online retailers - including but not limited to those referred by Connecticut-based affiliates like you - even if those retailers have no physical presence in the state."
But that wasn't my favorite part of the email. Here goes...
"We opposed this new tax law because it is unconstitutional and counterproductive."
Yes, Amazon, ya' gotta call it a duck if it quacks. And this thing is quacking really loud. Further more...
"It was supported by big-box retailers, most of which are based outside Connecticut, that seek to harm the affiliate advertising programs of their competitors. Similar legislation in other states has led to job and income losses, and little, if any, new tax revenue."
When I first heard about the possibility of a new tax law, I didn't believe it'd actually get approval and pass. But just like other crap going on in America lately, it seems that we ought to get used to expecting the unexpected to transpire with great approval and mobility. And it's a shame. Welcome to American Democracy.
Be good.
Be patient.
Be in the moment.
Be taxed outta your mind!
~MissNikkiAnn
Thursday, June 09, 2011
Wednesday, June 08, 2011
Just another day of phone calls..... not rich? not insured? good luck!
This is the American health care system at its worst.
Tuesday, June 07, 2011
Are you a different person now than you were 5 years ago?
Not really. I just gain more awareness as the years pass, as life keeps unfolding.
Do you often forget that there is a person with emotions, on the other end?
I wish I could, it would mean less anxiety for me. I am so concerned about emotions that I often miss out on a lot, just not wanting to be around folks, thinking about how much emotional energy it takes to be with people. I have an illness that affects my nervous system, so my "normal" heart rate runs 100 to 140 all the time (even lying down). My doctors say that this has a lot to do with why I feel so overwhelmed by what would appear to be "easy" social gatherings.
So I try not to be so hard on myself and my judgement of what emotions I "think" I might encounter just by venturing out...let's say...to the grocery store. I'm worried that the cashier might take the way I hand her the money wrong, or that I'll offend a fellow shopper by being in the way. So emotions are an issue. And I wish I could forget sometimes. Just let go.
Monday, June 06, 2011
Day of Visibility
Sarah (@potsiemommy on YouTube) is a fellow Dysautonomic & POTS patient. She's an awesome mom, wife, daughter, sister, friend, singer and flutist. I admire her strength for making this video.
Subscribe to:
Posts (Atom)