Saturday, March 19, 2011
Videoshoot : Abege "I like it" @ Porto, Portugal. 2007 @kaysha
Kaysha (@kaysha on Twitter) is a longtime Twitter friend. He is passionate and talented beyond my comprehension. Here's some footage he'd taken during a recent video shoot. I love the fact that his fans get to keep up with not only his work but also his creative process through the makings of his very own intimate, self-made videos.
Friday, March 18, 2011
Venting
I understand her frustration. Try to watch the entire video, there's a part where she begins to cry. That moment gripped me, her vulnerability spoke to me. My gosh!
Wednesday, March 16, 2011
I Am Here
Just finished doing my internet rounds, from one intriguing site to the next.
Just thought it only smart to drop-in my own site and see how things are going.
And?
They're going.
The page is still here.
Be well.
Just thought it only smart to drop-in my own site and see how things are going.
And?
They're going.
The page is still here.
Be well.
Tuesday, March 15, 2011
Monday, March 14, 2011
Wednesday, March 09, 2011
Monday, March 07, 2011
Sunday, March 06, 2011
Keeping You Up To Speed…
I have a lot going on at once. Since I am finally at the end of a month-long Dysautonomia flare, I am trying to play catch-up. In addition to playing catch-up, with the help of my psychiatrist, whom I adore as a human being, I am trying to implement some activities that will help me work towards my goal of creating cash flow on my own. I have not yet been approved for SSI or Disability, so my income is ineffectively $0.00 per hour, which stings. And sucks.
As I am learning to live and work around my disability, we (my psychiatrist and I) are trying to figure out how I can utilize my talents from my bed, in the lying flat position, in order to make a livable living with or without the aid of SSI/Disability. As I’ve told her, eventually (if I am awarded money from SSI/Disability) I want to be financially independent of those systems sooner than later. Just as a blind person, or deaf or mentally handicapped person can generate income despite their disabilities, I too feel compelled to do the same. So our brainstorming has led to my attempting writing by voice recognition applications that I use while I’m too sick to be upright. It’s a bit daunting, but remember how daunting text messaging used to be before QWERTY pads? Same thing.
This morning I got an email letting me know that I’ve been accepted as the group leader of MDJunction’s Non-Familial Dysautonomia Forum. I feel honored and excited about the endeavor, and am looking forward to advocating for Non-Familial Dysautonomia and chronic illness sufferers in general. I’ve also been using my YouTube vlog as an advocacy tool by making my own videos and connecting with other Dysautonomia/POTS (Postural Orthostatic Tachycardia Syndrome, a form of Dysautonomia that I have) patients.
And there’s so much more, but right now I am in so much pain and need to go handle that and Sir at the same time. One thing I will say about Sir is that I am so proud of him. He is crazy as hell, but he’s doing such a great job in kindergarten, and I am thoroughly enjoying watching and listening to him read; which I think has been my favorite part of his kindergarten experience. Yay for reading! I heart books.
Be well.
*Photo--Sir’s first day of kindergarten, Fall 2010
MissNikkiAnn
Raw Foods Journal Entry #2
The journal entry can be found at this link: https://penzu.com/p/d52be836.
Friday, March 04, 2011
MissNikkiAndroid: Sipping Coffee And Reading A Steamy Novella
Published with Blogger-droid v1.6.7
Wednesday, March 02, 2011
Tuesday, March 01, 2011
Sunday, February 27, 2011
My Bad
Folks, I am still here, but am just in the last few days recovering from that one-month-long Dysautonomia flare. And it's difficult to post when I can barely hold my head up. I am still doing the Raw Foods Trial, but am no longer connecting it to Roger Bezanis. Let's just say that he's insulted by my Bat Shit Crazy Daily; he has a right to his feelings and I have a right to my freedom of speech. But please take some time and research this amazing guy, he's got knowledge that the world needs.
It's tax time. Yup. And that's where I'll end this: It's tax time.
A twitter friend of mine wrote this book. He's unemployed, has kids, a wife and talent that the recession refuses to capitalize on.
Friday, February 25, 2011
If you had to legally change your name, what would you change it to?
If you had to legally change your name, what would you change it to?
Why don't people realise how much democratic and knowledge-promoting potential there is in pearltrees.com ?
Simple answer: They probably don't know that www.pearltrees.com exists, just as I didn't know this until about 5 minutes ago! *blushes* I am now taking a look at the site. Thanks.
Why would you like to learn Greek? Have you heard the sound somewhere? What appeals to you in that language? - I started learning it; it is nice. Refined, differently from French; lisping a bit, but pleasant.
I speak Spanish (studied abroad in Costa Rica) but am now lucky that I am exposed to Greek because Sir's classmate's parents are from Cyprus. I am friends with the classmate's mom and am around her a lot as she converses with her two children in Greek. Her kids attend Greek school every Saturday and Greek Orthodox church every Sunday. I can honestly say that this makes for a very simply reason for my desire to learn the language; not much else behind my reasoning!
Thursday, February 24, 2011
What language would you like to learn how to speak?
What language would you like to learn how to speak?
Sunday, February 13, 2011
Dysautonomia Flare
This marks the 10th day of my most recent Dysautonomia flare-up. I tell ya', I want to jump off my bed to my death. Each time I have a bad flare, which is usually up to twice a month, I am reminded of how determined my symptoms are. As you know, I am on a 100% raw foods diet (and yes, I'm even chewing the small piece of raw beef everyday), but my flare started a few days before I moved from 80% to 100% raw. So I have a long road to go before seeing a big turnaround. On the other side, my doctor and I were commenting on just how quickly the diet is healing some of my colon issues, which is an important issue since digestion directly affects the absorption of nutrition. And though I still have slow gastric digestion in the upper tract, at least it comes out the colon and doesn't sit there causing my body to be anymore toxic than it is.
What does stuff mean? Not much. Just got frustrated with being bedridden and decided to blog about a piece of my life. And if you read about a crazy woman running through the streets, bucking shots in the air...it's only I.
What does stuff mean? Not much. Just got frustrated with being bedridden and decided to blog about a piece of my life. And if you read about a crazy woman running through the streets, bucking shots in the air...it's only I.
Published with Blogger-droid v1.6.7
Tuesday, February 08, 2011
Sunday, February 06, 2011
Journal Entry for MissNikkiAnn's Whole Raw Foods Trial 2011
At the following link you will find a written journal entry about what I've eaten today and what's happening with my Whole Raw Foods Trial: https://penzu.com/p/018fdd84
Saturday, February 05, 2011
Thursday, February 03, 2011
Saturday, January 29, 2011
Motorola Atrix 4G Shows Off for the Camera [VIDEO]
OMG! We could have never imagined such a device in the 90s! Never. Ever. Period. Did I say: period? Period.
Thursday, January 27, 2011
If you were stranded on a desert island, which one person would you bring with you?
Do I have to say my son? If not, my ex-boyfriend Paul. We'd keep each other laughing. So would my son, though.
Sunday, January 23, 2011
Saturday, January 22, 2011
Tuesday, January 18, 2011
A Request
Hello to all!
Just a note to say that almost all of the products on this page are things that I own or have invested time or money in. Please feel free to click on the links and see what my recommended books and other mentioned items are about. More and more I am liking the idea of exposing you all to the books and things that have inspired me to keep on living, loving and giving. I hope that they inspire you as well. And if you make a purchase from Amazon.com from my page, you're helping me too. Today I have posted one of my favorite books by Neale Donald Walsch, which is located over there to the right of this page ----------->.
Mad Love,
MissNikkiAnn
Just a note to say that almost all of the products on this page are things that I own or have invested time or money in. Please feel free to click on the links and see what my recommended books and other mentioned items are about. More and more I am liking the idea of exposing you all to the books and things that have inspired me to keep on living, loving and giving. I hope that they inspire you as well. And if you make a purchase from Amazon.com from my page, you're helping me too. Today I have posted one of my favorite books by Neale Donald Walsch, which is located over there to the right of this page ----------->.
Mad Love,
MissNikkiAnn
Sunday, January 16, 2011
The Spoon Theory written by Christine Miserandino
A must-read for those trying to understand what it's like living with a chronic illness. It's a short read.
The Spoon Theory written by Christine Miserandino
The Spoon Theory written by Christine Miserandino
Thursday, January 13, 2011
Soured Sweetness: roger bezanis on caffeine/coffee/ orange juice
Soured Sweetness: roger bezanis on caffeine/coffee/ orange juice: "Class # 210 of TUE 28 DEC 2010 is just about to start!! Aerobics for the mind! Soon thoughts will be jumping.Class # 210 of TUE 28 DEC 2010 ..."
Bat-Shit Crazy Update
So I've been implementing some of Roger Bezanis's Whole Raw Foods ideas. As some may know, for 11 years I was a vegetarian. I found that it suited my taste buds and my body. At one point I even foung myself eating like a Vegan, which seemed to be a natural progression (It's important to note that during my childhood I preferred only to eat hamburgers, and not much else on the meat end.). But through all of that, I still found myself experiencing weird health issues. I'd fast and detoxify in various forms just to feel rejuvenated again. But still...something lingered. And on June 1, 2006, I woke to find that I'd lost the site in my left eye. So again as I'd done two years prior (but had given up after numerous tests), I started the journey once more. The differnce this time was that I'd press on until I better understood my body. Each day I arrive at more and more understanding. And most recently I am deriving some benefits from implementing SOME of Roger's recommendations.
Press On...
Your help commeth from The Lord.
Press On...
Your help commeth from The Lord.
Published with Blogger-droid v1.6.5
Wednesday, January 12, 2011
Sunday, January 09, 2011
I breastfeed my dog | Pick Me Up magazine
This is something one of my Twitter buddies tweeted. Have a go at it.
I breastfeed my dog | Pick Me Up magazine: "- Sent using Google Toolbar"
I breastfeed my dog | Pick Me Up magazine: "- Sent using Google Toolbar"
Dinosaur Wars Coming on PBS
Awesome!
Airing: January 19th
Sir has this book:
Airing: January 19th
Watch the full episode. See more American Experience.
Sir has this book:
Thursday, January 06, 2011
Tuesday, January 04, 2011
Something You Might Want To Know? Seriously!
I wrote a post about breastfeeding back in 2006, when I was breastfeeding Sir, called: Something You Might Want To Know. Since I don't blog as often as I used to, I am always amazed at how many hits this site gets without my updating it frequently. Over time, the Bat-Shit Crazy answer has been that many from around the globe flock to that breastfeeding post (click here to view: "Something You Might Want To Know"). Funny thing is, you may want to know that my boobies still produce milk--darn things just randomly starting leaking one day. And to my knowledge, this boobs have never dried out. But that's not very important, as I recently had a Thermal Balloon Ablation (yeah, you can look that up on your own!).
And that's all I really wanted to say. Seriously!
And that's all I really wanted to say. Seriously!
Monday, December 27, 2010
Christmas 2010
So all is well. Sir was blessed with so many material things this Christmas season. But more than anything, he showed me time and time again how awesome and natural it is for children to surrender to their Spirit. Homeboy can recite The Lord's Prayer better than some adults. And not only can he recite prayer, but he can give awesome prayer straight from his own heart and soul. And that's MORE than a mother could ask for this Christmas season. So I am blessed. Cause to me, Christmas is about children, youth and birthing. It's a season where we all (even non-Christians) recall and live within the story of the baby Jesus being born. And of physically reenacting how he received gifts from men. I am filled. And I am filled that you were able to come to this page today and witness how awesome God has been to me and mine. Amen.
Below is a link to one of my favorite books by one of my favorite authors, Marianne Williamson. Many of you may recall how I once did my own voice-over/audio recordings of some of her work.
Friday, December 24, 2010
Tuesday, December 21, 2010
Changes
You will begin to notice that I've incorporated ads into my blog. I decided on this after a conversation with my doctor about how frustrated I am about my finances due to not receiving Long Term Disability, Unemployment or anything else at this time. In the conversation I said: "I'm so frustrated that I almost want to put paid ads on my blog." To this she replied: "What's so wrong about that?" I didn't have an answer. Not one thought came to mind. And when there's no answer, there should be a try. So here's my try. Bare with me.
*Please note that all Amazon.com products are things that I've read or are by my favorite authors, like the following by Neale Donald Walsch.
*Please note that all Amazon.com products are things that I've read or are by my favorite authors, like the following by Neale Donald Walsch.
Friday, December 17, 2010
I Tried…
but yesterday didn’t go as planned. I was stricken with pain not long after my video post, so I was unable to make the cookies. But we did get the haircuts. Today I have lots of craziness going on, and the pain has not let up. I’m taking prescription strength pain meds on top of the other medication that is supposed to help control my pain that is triggered by my nervous system.
I’m medicated the fuck up!
Sir has another school Christmas program today (that’s what happens when you send your child to a Christian (not Catholic, CHRISTIAN) private school--they reserve the right to have 5 million programs when it’s a Christian holiday approaching. So I need to go to that, plus two doctor appointments AND it’s a half day--and last day until after the New Year--for Sir (gets out at 12:30 p.m.). So I have no idea how it will all flow. But…
GOD has never failed me nor forsaken me.
Thank God!
Thursday, December 16, 2010
Wednesday, December 15, 2010
Testing the Blogger-droid Application From Bed & Motorola Android
In bed, warmly tucked in my sheets, knowing that I must re-enter the crazy outdoor world; and, it's 2 degrees out (No, I could not locate the "degree" sign.)
Published with Blogger-droid v1.6.5
Tuesday, December 14, 2010
Blog Update
This blog is now open to comments again, as it appears that the spammers have stopped harassing me.
Thank you for your patience?
Welcome to Dysautonomia
I’m back to this page again. It’s 6:00 a.m. here in Connecticut. There’s snow outside, so Sir’s school has a 90-minute delay. This delay suits me just fine since my Dysautonomia is kicking my azz this morning; I woke wondering how I was gonna make it through my SIMPLE day, cause it’s not as if my life is all that complicated:
A. Got Sick
B. Went on Medical Leave
C. Insurance Company Hated Paying Me
D. Insurance Company Dropped Me
E. Tried Going Back to My Job
F. Always Got Sick at Job
G. Never Worked More Than an Hour or Two at a Time (skipped WEEKS with no pay)
H. Got “Discharged” from Job Because of Illness
I. Was Denied Unemployment Because “I Am Unavailable for Work”
J. Have Not Seen A REAL Check Since May
K. Am Waiting to Hear from SSI
L. Am Waiting to Hear from Disability
M. Am Waiting for Hell to Freeze over
I. Am. An. Idiot.
Picture of an Idiot
Monday, December 13, 2010
Me & My Man
Sir and I are in my room. I think he’s driving me crazy, but I’m not sure just yet. I have lost my mind before. Seriously. Thing was just blown for about 24 hours. Gotta say, that was an awesome 24 hours. Awesome. But my mind is not blown at the moment. But (yes, that’s the third but, which is about the size of my real butt) I am next to a 5-year-old who is throwing a Japanese Yo-Yo across my room while yelling nonsensical things that little boys yell when throwing Japanese Yo-Yos. Then again, this post in itself is pretty nonsensical.
As is life itself.
Sunday, December 12, 2010
I am still here?
Aside from the fact that I feel like shyt today, I find myself coming to this page. Not so much out of desire, but more so because I feel some strong attraction that is beckoning for me to be here. Personally, I’d prefer the comforts of not having to perform this daunting task. Daunting because as soon as it starts (the pull, that is!), I never know when it’ll end. Today? Tomorrow? Never? Whenever. And I also prefer to keep to my silent world. I like to. But I also know that when we fight the whisper, life because a fight…a struggle, and that’s not all too enjoyable to me, as it is to some; and I am not against those who enjoy the struggle, for each of us must live the way we see fit.
~MissNikkiAnn
Friday, July 09, 2010
My Official Diagnosis
Dysautonomia with Postural Orthostatic Tachycardia Syndrome and Autoimmune Disorder
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