Wednesday, February 29, 2012

This 10 seconds by @MyHarto just made my day.

Watch "Happy Leap Year, 2012!" on YouTube by @MyHarto.


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MissNikkiAnn’s @Klout: FOX VIP Swag

I must admit, because of this perk, I became a “New Girl” sitcom fan.  I am not a television watcher, and would have never known about this show without Klout and FOX VIP bringing the experience right to me.  Now I Tivo it and transfer the show to my laptop to watch at my leisure.

And the best part was receiving freebies throughout the Perk.  My favorite was the “New Girl” swag, which consisted of a t-shirt, fake nerdy glasses and a little carrying tote that caught the eye of many people this past summer (as did the shirt)—go figure!

These are pictures from my FOX VIP Klout Perk. 

IMG_20111006_202827IMG_20111006_202821

IMG_20111006_202921IMG_20111006_202932

IMG_20111006_202937IMG_20111006_202928

MNA: The Voices of Dysautonomia Newsletter

I enjoy sharing my humanity through whatever talents I am lucky enough to have.  And with that being said, I present to you various highlights of those living with or dealing with Dysautonomia and its various syndromes, disorders and symptoms.  Hear the myriad of voices of those overcoming difficulties of chronic illness and invisible disability, like me! 

Subscribe to MNA: The Voices of Dysautonomia
Enter your email address:


A TinyLetter Email Newsletter
Or...go to http://tinyletter.com/MissNikkiAnn for more information.

Huh? No Pink Light? But it's my favorite color!

Watch "There is no pink light" on YouTube


What I love most (more than my own son!) does not exist.  Now that's some bullshyt!


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How Far Away Is Tomorrow? Let's See!

Watch "Distance and Special Relativity: How far away is tomorrow?" on YouTube


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What Are Leap Years?

Have a look and listen!  Don't worry, it's short, packed with scientific information, but right to the point.  Straight.  No chaser.


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Friday, February 17, 2012

MissNikkiAnn a.k.a. MNA...Catchup! (@dzakyem)

Dzakye is a dear friend of mine.  His thoughtfulness brings delight to my heart and laughter to my failing body.  Our friendship is a representation of a higher potential for technology and humane communication across invisible lines and barriers.  A Swiss interacting with an African American...  There is no boundary nor distance that love cannot overcome.


"Be good.

Be patient.

Be in the moment.

Be in possession of an awesome Swiss friend."


~MNA


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The Misadventure of MNA: I Hate Hospitals


I spend way too much time at hospitals and doctor appointments.  Tuesday through Friday are designated hospital and doctor days.  Thursdays I am in the hospital all day.  Tuesdays are ALWAYS double-booked with doctor appointments; and so are half of my Wednesdays.  So imagine my horror yesterday when I was in the hospital for my weekly infusion, only to wake from a wee nap to find out that I was being carted over to the emergency room. 

From what I understand, my nurse got nervous after having given me a big gallon enema that NEVER came out.  I am used to enemas entering into the land of no return; I'd told my doctors and nurses about how, when I do them at home, they NEVER come out, and that if the do, it'll be 24-hours later.  I guessed no one believed me...so they panicked when witnessing it happen.

In the emergency room, I was given another bottle of magnesium citrate (cause I'd already had my two helpings of Miralax that morning, and my other helping of an entire bottle of magnesium citrate the day before. I've been alternating the two laxatives for two weeks without relief.) and another gallon enema.  Guess what?  No shit.  And by this point I'm getting sicker and sicker because I was in need of the infusion that had ended abruptly.

Two doctors wanted me admitted.  Another doctor was a straight ass.  Guess who got to assume power over the situation?  The ass.

I will say no more.

"Be good.

Be patient.

Be in the moment.

Don't Be An Ass."

Cordially,

MissNikkiAnn

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Saturday, February 11, 2012

We Are All Waiting, Too

A long sigh...


All I know is that she finally exhaled.


And one day each one of us will follow.


~MissNikkiAnn


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Damn Quotable

Four simple words can say so much...


"Your government is stupid." ~Chip Tatum


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Tuesday, January 31, 2012

Downton Abbey, Season 2: Episode 1

I forgot to remind you guys that Downton Abbey is back!  
Here's Episode 1 of Season 2.  *Late, but still ripe for the picking!

Watch Downton Abbey, Season 2: Ep. 1 on PBS. See more from Masterpiece.

Saturday, January 28, 2012

This Could Be Your Last Life by Mooji


I needed to be reminded of this during this period of being ill. I thought I'd share, just in case anyone else is in need of this reminder.

Saturday, January 21, 2012

L.A. Noire Beatdown?

This game is kicking my arse, even Sir plays it better than I;  I should stick with The Sims?

Friday, January 20, 2012

Fair Play?

This is what I am up to...


While Dysautonima is not playing fair.


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Monday, January 02, 2012

"Is MY cancer different?" (@ismycancerdiff)


Being a woman whose mother (and my mother's sister) is a breast cancer survivor, and being that cancer has taken two of my father's sisters and recently a beloved uncle (who was also Sir's godfather), I know just how important this question is.  For those struggling with cancer personally or by way of caring about someone who has it, this site is a great resource for answering the question, which goes without saying, but I will answer it, emphatically...

Sunday, December 18, 2011

COFFEE Love

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Elliott Krane: The Mystery of Pain as a Disease

My doctor played this video for me during my appointment this week, and I thought I'd share it with you.  I have some of the most amazing doctors (and I have a couple of the "other kind" as well).


Thursday, December 08, 2011

@YouTube, You Disappoint Me

Why must we as consumers suffer with the unethical ways in which Big Business operates?  Why do we sit by and suffer quietly.  REVOLT!


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Wednesday, December 07, 2011

David Icke: Consciouness DNA

Don't "think" on it, let your intuition guide you on the following journey of words. ~MissNikkiAnn 

Saturday, December 03, 2011

Friday, December 02, 2011

@OccupyHartford's Platform and Demands meeting this Sunday 12/4/2011

The Platform and Demands meeting will be having our third meeting this Sunday from 2-5 PM at the Kabbalah House located at 1023 Albany Ave in Hartford’s historic North end . Plenty of on-street parking available. We warmly welcome your  participation and efforts toward this important project.
Currently, the working list is…
  1. End U.S of wars of aggression and occupation and bring the war dollars home now.
  2. Make the corporations and the rich pay their fair and just share of  taxes.
  3. Quality housing, food, healthcare, education, childcare, and a basic income are lifelong human rights for all.
  4. A broad employment program that recognizes everyone’s right to meaningful, socially, and environmentally beneficial work at a living  wage, while prioritizing the needs of socially and economically marginalized groups in the local community.
  5. Adequately funded, compassionate empowering, culturally and situational appropriate rehabilitation and education outreach services for victims of human trafficking, homelessness, sexual exploitation, prostitution, drug addiction, domestic violence, child abuse, and other social ills.
Click the following link for more details:  Platform and Demands meeting this Sunday 12/4/2011

Tuesday, November 29, 2011

Handwritten

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"We're on G+"


Sunday, November 27, 2011

Ex-Girlfriend (Stacy Francis) - Official Music Video: "Why Can't You Com...

My friggin' jam!
In high school I had one of those tent dresses in hot pink.
"A fryin' pan straight to the dome!"
~Ex-Girlfriend

Monday, November 14, 2011

"I" Cannot Do It by Mooji (video)

I watch and listen to this once a day, it is truly helping me to sustain through tough times. The part I like most starts around 30 minutes in. Enjoy.

Friday, November 11, 2011

Just Saying...


Trying to recover from that 9 days without electricity and heat.  Truth be told, there are still thousands in Connecticut without electricity, and for those people, this would be day 13, I believe.

Monday, October 31, 2011

Friday, October 28, 2011

@OccupyHartford's EMERGENCY GA, Protect camp for upcoming heavy snow

This is New England, and so the snow is on its way again (yup, already snowed yesterday).  For those who are capable, please help with the effort to keep the overnight occupiers safe and warm.  There is an Emergency General Assembly meeting tonight, and the snow preparations will begin (even though it's always been in the works) tomorrow.



Click the link for more information: EMERGENCY GA -- Protect camp for upcoming heavy snow

Well Said...

A concept without any belief has no power.  A concept with belief can start a war or begin to bring healing to a nation.  
*Image: Swatch by MissNikkiAnn
~Mooji

Thursday, October 27, 2011

Occupy Hartford Committee Meetings (cc: @OccupyHartford)

Just got out of the hospital and am on my way to a Occupy Hartford committee meeting.  No matter what my physical limitations, I try to give my best (or what little energy I have) to this cause.

Be in the know:  http://occupyhartfordct.com/

And...

"Be good.
Be patient.
Be in the moment."

~MissNikkiAnn

This Is America, by my old Twitter friend @RonaldLewis

This is America by RonaldLewis

STUDENT WALKOUT and MARCH TODAY!!

In solidarity with Occupy Hartford.
STUDENT WALKOUT & MARCH & TODAY!!


On Thursday, Oct 27 at 2PM students and faculty members of many area colleges and universities will be joining Occupy Hartford for a special walkout in solidarity with the Occupy Wall Street movement.  All will meet at Turning Point Park/Occupy Hartford for a rally, food and music.
  • STUDENT & FACULTY WALKOUTS
  • TEACH-IN to SPREAD THE WORD
  • RALLY and MARCH !!!
  • DINNER, MUSIC & FUN
Uconn, UHa, Trinity, Wesleyan, CCSU, ECSU, and more will be participating in this event.  For more information and to RSVP, click here.

Great reading of Occupy Wall Street's General Assembly's Grievances (cc: @OccupyHartford)

Sunday, October 23, 2011

Mooji Live 10232011


Video streaming by Ustream "I don't have a life, I AM life. You, we, I, us, we are life. And this knowledge will not harm you, it will set you free." ~Mooji

This is what being at @OccupyHartford's occupation site feels like!

When Truth and Art Converge by @Dzakyem and @MissNikkiAnn

Below is an artistic audio reading of the post, which is below the Audioboo, I posted on Google+ yesterday.  My dear friend Dzakye from Switzerland is an amazing talent.  You can listen as you read along.


"Google finally barked at me about my name. Ain't that some shyt? I mean...call over the pedophiles, why don'tcha. I have a kid. I am a woman who was molested from ages 4 to 9. Do you think I am foolish enough to allow another possibly trauma to occur? Mama didn't raise no fool. 

Google, I really like your products, always have, even have an Android phone. But the day you think you are putting the well-being of me and my family out on Front Street is the day you are officially and finally WRONG. 

Even my nosy government allows for certain protections (try getting something out of a patient's file at a doctor's office or hospital, HIPPA for that azz!) 

Don't you know why phone books lost their luster? People are FINALLY wise enough not to divulge that type of information. Yeah, I know that information is easily searchable on the web nowadays, but the wise among us are working on fixing that atrocity, too, for the sake and safety of the collective society--especially for the vulnerable children of the world. 

And one more thing, I am a paying customer. I buy your products, doesn't that warrant some sort of investment and say in how you handle MY personal information. 

Don't you feel any compassion for your customers? And if compassion is too much to ask for, how about Customer Service? 

Who are you serving? The pedophiles, rapists and serial killers, always happy to find a service that offers its users up for grabs by way of personal information. 

Or do you serve the customer? The people who pay you and trust you to be "humane" enough to know that your requests for this information make us susceptible to irreparable damage, and on its worse day, makes you just like Facebook (and please know, I've never had a Facebook account for these reasons, it was a wise choice). 

So, what's in a name? A hell of a lot! 

 ~MissNikkiAnn"

Click here to see the original Google+ post and thread: https://plus.google.com/u/0/103659673808075352396/posts/Ts7M3zcNzBd

Saturday, October 22, 2011

In My Own Words: Sustainable Greatness



Mooji is speaking about how he is not an entertainer.  How he has not come to entertain.  He was willing to let go if what he was giving was not being asked for.  And did not my beloved Jesus Christ do the same?  He did not beg for the people to come to hear his truths.  The people knew that they should come and present him with the questions or the hunger to be fed.  

It is not vanity that leads such a thing.  It is the truth, and it is not as colorful as all the other falsehoods and illusions that the physical experience dangles in our faces around the clock.  And it is okay.  There are many levels to experiencing.  

But then there comes a call, a call that we feel compelled to answer.  And the call is unlike any call we have ever heard before.  And we move forward.  Not understanding that which we have nearly unconsciously accepted.  

And when we arrive, and we get a taste, we revel in its awesome perfection.  And we are not used to sustained peace.  And we turn back to that which has been familiar.  Yet...but yet...the call continues to come.  And we are afraid of finding our way to sustaining the original encounter, not knowing that there is nothing to be done, but just be.  To leave all original ideas at the door, and just enter.  It is our most natural Self that awaits.  There is nothing to fear.  Only the idea that we are not good enough to embody this greatness.  

But I tell you, you are only the greatness, and the other experiences are only allowed through the Greatness that gives grace and mercy to the human experience.  The Greatness knows that all is okay.  And since you are of that Greatness, you live the human experience, doing things that somehow you know are okay, even during your moments of intense doubt.  For nothing is allowed that Greatness would not allow.  And Greatness is all.

~MissNikkiAnn, an excerpt from my 750words.com, October 22, 2011, journal entry

MissNikkiAnn Is Very Sick (cc: @OccupyHartford)



And though my mind and heart want me to be physically active with Occupy Hartford at the Turning Point Park occupation site, my Dysautonomia (a progressive and chronic illness) prevents me from doing so at this time.

I am with my fellows in spirit, and will continue to do what I can to support and further the work we are doing.  Occupy Hartford is an amazing and talented group of diverse people.  And regardless of the false image that Mass Media (not true journalists) wants to project, those within the cause know the truth.  And as the numbers grow, more and more we will begin to ignore the vanity of the media, and seek not their approval, but the approval of those wanting to delve deeper into the myriad of issues that are darkening the spirits of humankind.

Compassion and solidarity are the true answer, and if anyone tries to convince you otherwise, I'd take a closer look into that person's personal motive.

MissNikkiAnn, from her sick bed


*Unedited, so don't belittle my effort by looking for mistakes.