Wednesday, August 31, 2011

Dear Readers

Please feel free to email me at anytime (many readers do!).  I say this because you may have noticed that I have removed comments from the blog.  I did not like how impersonal commenting felt to me.  I also like my readers to feel as if this is a one-on-one experience they are having with me and NOT the entire web.  

Email (instead of in-the-moment heated comments) provides you with the benefit of knowing that I am not here to argue or judge your feelings.  You can voice yourself right to me and will probably be surprised that my "Libra" ways lend me to being fair; I am hardwired to agree with each individual, for no one person is TOTALLY wrong.  Within every topic there are a million and one ideas, just because yours differs from mine does not mean that we cannot be of some support and help to one another--it happens everyday in people's households.  Go figure!?

Email me if you need me or you feel that I--yes, I--need you.

missnikkiannhelp@gmail.com

~MissNikkiAnn

Mass Media Fast

My mass media fast went really...fast.  It came and went and has left me thinking about all that has transpired in my life (not throughout the world) within in that 2 weeks (and a couple days).  I would have never imagined that things would have gone the way they have.  I am usually so consumed by the word that my own life gets less attention than it should.  It is a reminder that we speak about a world we desire without first being the change that we want to see.  If you are the change, you get a chance to see that desired change each day.  If you are about "talking" about change, you get a chance to see yourself and others talking about change each day.  

It's the classic: What you put your attention on, you get more of.

And with this fast all I've gotten is more conscious awareness of my life, in the moment, as it is happening.  Having received this awareness is the thing that is naturally prodding me in a direction of innate change.  I say it is innate because we're humans, we were born to be ever-changing every nanosecond (probably more) of our existence.  I do not claim to be a "studied" scientist, but I am conscious enough to see my eyelashes falling out and my nails growing every day.  That IS the change; I don't need a textbook to understand it.

I hope all is well with my readers.  And if it is not, as it has not been with me, then let us both remember to...

"Be good.
Be patient.
Be in the moment.
Be of understanding that it will change."

~MissNikkiAnn

Sunday, August 28, 2011

Wednesday, August 24, 2011

Monday, August 15, 2011

And then there is this opportunity...

Watch "Anonymous-Operation-BART" on YouTube

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Operation Mass Media Boycott, Day 1: Cannot Trust Every Doctor

I thought this video very fitting being that it's about reclaiming one's life; as we reclaim our choices/time/resource. It all goes hand-in-hand, taking back your mental freedom, which affects your physical reality. We are natural consumers who have been manipualted by a media of cannibals. I am not here to preach against garbage consumption--you have free will. I just want you to be able, if you "choose," to see garbage when it's being handed to you on a faux, platinum-plated dinner plate. Just take a closer look at it, marinate on matters and reheat the garbage in the morning (that's what we have radiation for) eating in full pleasure and consciousness.

Watch "Cannot Trust Every Doctor" on YouTube

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Starbucks for Android

Maybe you need this in your life?  If not, just ignore.



Friday, August 12, 2011

MissNikkiAnn Boycotts Mass Media: August 15 - 30, 2011 ("Where will you be?")

"We close our eyes and ours ears to what they call journalism." ~Anonymous (Anon)

When? August 15 - 30, 2011

"Where will you be? And to whom will your precious time go? What about all of those things you've been putting off? Quality family time. A walk. Painting. Reading a book. Writing a book. Doing nothing. Sitting in absolute silence."

~MissNikkiAnn, a supporter of the humane in humanity
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Anonymous - Operation Boycott Mass Media

Watch "Anonymous - Operation Boycott Mass Media" on YouTube
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Thursday, August 11, 2011

Me Likes: Empty Heart (Original)

I'm loving this song and video. Give it a look and listen.
Lyrics by cbfall & madstadd13 All Rights Reserved © 2011

Jaded

There is a thick sadness that fills me today.  I tried shaking it.  I tried to nap through it.  But it's still there.  When I try accepting it, I feel a bit better--the cloud that covers me feels more temporary that way.  I am easily agitated...irritated...I try to keep to myself.  Try.  But my life is about always being around people.  Never having a moment to myself; especially when I'm flaring and can't even drive; which means that I don't even get that few minutes alone time in my car while on the way to being poked and prodded by whatever doctor or nurse.  It's been a long time since I've used the following word on my blog...

jaded.

I bring attention to it because there are others out there, right this moment, who are feeling the same way.  And I'd like to say that it does pass.  I never know how long it will stay for, but I know that it always passes.  As I age, I am also learning that even within my jadedness, there are still glimpses of what is other than jaded.  Meaning, it is rare that a person lives in a state of psychotic jadedness.  Even though I feel jaded, I still experience other emotions at the same time--happiness, even.  Trust me, you'd know if you ran into someone with a jaded psychosis going on...it'd feel as if you'd actually met the devil.  They'd have that I empty, I-don't-gives-a-fuhck look in their eyes.  If that approaches you, run!  Those are the folks who are liable to eat your butt-hole for dinner as some type of delicacy (seriously).

So I'm just your run-of-the-mill jaded (sans psychosis).  It'll pass.  And when it does, I'll be happy about it.

"Be good.
Be patient.
Be in the jaded moment--it'll pass."

~MissNikkiAnn


MissNikkiAnn's Pearltrees

missnikkiann and A Fight For Democracy / Art / COFFEE / Dysautonomia & Autoimmune Issues in MissNikkiAnn (missnikkiann)

Wednesday, August 10, 2011

MissNikkiAnn's Reaction To: "London Riots. (The BBC will never replay this. Send it out)"




Wow!  She just randomly called him out as a rioter!  Demonstrating is NOT equivalent to rioting.  And being at a "demonstration" that TURNS into a riot is not the same as actively seeking and going out to riot.

Wow...I thought our own (America's own) CNN was rubbish, but BBC just put a bad taste in my mouth.  And the bad taste in my mouth has nothing to do with the London Riots, it has to do with garbage journalism and reporting; and this is coming from a woman (ME) who's has worked in the media and pursued a graduate degree in communications and journalism (one semester short of a degree that I stopped pursuing in 2001).  I say that for those naysayers out there who might ASSUME that I have no authority on the matter.

The reporter reminds me of Oprah, always asking questions and never being patient enough to hear the full answer.  That's not what being a journalist (news reporter, interviewer) is about.  Let the interviewee tell the story.  Or if you're the storyteller, pain the picture and try really hard not to color with your emotions.  Journalists in WWI had to deal with a lot of emotional and dangerous pressure, but even they were capable of refraining from forcing their biased opinions on the story and story-makers.  Can you image bombs dropping and trying to maintain your composure and wits?  This journalist is sitting in a cushion-y office, popping off at the mouth.  All she had to do was shut up and listen, he was doing all of the storytelling himself.  People and their egoic need for control and their egoic need for the spotlight have ruined the field of journalism.  Media my azz!  

As a journalist, be a slave to the story.  Follow THE STORY.  The story will lead you to greatness.  And a pure journalist is in it for the story, not for fame or fortune.  They want to disseminate TRUTH to the masses.

"Be good.
Be patient.
Be in the moment.
Be open to allowing the story to be told."

~MissNikkiAnn

MissNikkiAnn's Daily Mugshot Pick: Tattotte's Mugshow

I love the things she does with her hair and makeup.  Add to that the shape and color of her eyes, and you've got one phenomenal mugshow.  Enjoy!
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Tuesday, August 09, 2011

"OpCannibis" by Anonymous

"They are Anonymous. They do not forgive. They do not forget. Expect them."
Watch "Anonymous - OpCannabis" on YouTube
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Arguing on the Internet - Crime and Punishment by The Amazing Atheist

*Rated R by MissNikkiAnn


This is classic!  He is so spot-on about the human condition.  Spot-on!  And anyone who's had an argument/issue/debate with another Twitter user, can surely relate to this.  And even if you don't agree, it will still resonate and have you bobbing your head with a resounding "yes."


Have a look!


Watch "Arguing On The Internet - Crime and Punishment" on YouTube
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Suppose You Met God by Mooji

Riots by The Amazing Atheist v. Knowledge of the United Kingdom?

I watched a video called "Riots" by The Amazing Atheist (you gotta press the link to view it: Watch "RIOTS!" on YouTube. ) and KNEW right off the bat that his UK followers were gonna be pissed about his not knowing the difference between the UK, Great Britain and England (and so forth?).  I only know what I know because of a wonderful YouTube video.  And so this is how the story goes...  


Oh, and FYI:  The "Riots" video is pretty good (funny more than anything else), and it does show Americans' lack of care for understanding the makeup of the United Kingdom...um...Great Britain...I mean...


Here goes...

Monday, August 08, 2011

Take MissNikkiAnn's House With You

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Spotlight: http://www.youtube.com/user/SuperFaannyy


I received a YouTube friend request from this young lady today.  I watched about five of her videos, admiring here talent, and realized that I just had to share her YouTube page with the world--the same way she seems to be working hard to do the same.  As they say...game recognize game.

"Be good.
Be patient.
Be in the moment."
~MissNikkiAnn

5 Things My World Showed Me Today: Novelty



#1 When it boils down to it, The People hate Wall Street.


I saw this Twitter today:




#2 The craziness of the world is "speeding up" just as Terence Mckenna (my favorite researcher, scientist and philosopher) thought it would. Terence died of cancer in the year 2000. 



(Terrence comes in at about 3 minutes.  Be patient, there are worse ways of spending 7 minutes of your time.)


#3  London is burning.  Burning with an outrageous need and desire for change.


#4  America is burning.  Burning with an outrageous need and desire for change.


#5  Mother Earth is burning.  And she will burn until she has finished cleansing herself.  So please stop putting out the fires.  The longer you fight her, the longer she will persist at doing her JOB.  It is only natural.


"Be good.
Be patient.
Be in the moment."


~MissNikkiAnn, a writer, researcher and curator watching novelty unfold as she is lies sick in bed

Get a coffee, give a coffee - Jonathan's Card

This is such a genius idea:

FYI:  If you need to know how much is on the card at any given time, go to Johnathan's Card's Twitter page (yes, the card has its own Twitter page): http://twitter.com/#!/jonathanscard.  It also has a Facebook page, but I do not have Facebook (never have) and do not support Facebook in any way.  Thank you.

Let me know if you give it a try!


So I went ahead and created a Twitter List for this, to make it easier:




The Tale of Two Cancer Patients by The Amazing Atheist


DAYUM!
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Sunday, August 07, 2011

Handwritten: Recoup Monday

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5 Things My World Showed Me Today


  1. Toys "R" Us is gearing up to hit consumers with a massive, pricey fall and winter holiday season.  Be forewarned.
  2. Toys "R" Us is like the government: They think kids are robots.
  3. Every parent has the same complaint: "He/She got the pillow pet, took a look at, adored it for its cuteness and hasn't bothered with it since Christmas."
  4. The government thinks I haven't noticed the gas prices creeping to $5/gallon again.
  5. People are like hamsters.  That wheel is addictive, huh?

"Be good;
Be patient;
Or just be too drunk to be held accountable."

FYI:  The latter never worked for me, but YOU could be the exception; there's one to every rule, right?  Right!


~MissNikkiAnn, very sick and a bit jaded

Spotlight On: Health Month - Live healthier, for fun!

I think this is a brilliant idea and plan to use it soon in some capacity--I may let you know what I decide. Take a look!



"Health Month is a game to help improve your diet, fitness, mental health, relationship health, and financial health – while enjoying it!

Health Month is about taking the SCIENCE of nutrition and behavior change and combining it with the SOCIAL GAMES of the recent social web to help people improve their health habits in a fun and sustainable way. If you can enjoy the process of living healthier, you're much more likely to stick to it."

~Taken from Healthmonth.com

Saturday, August 06, 2011

Cuppa Love: Vanmaanen's Daily Mugshot

This makes me want a cuppa!  Just sayin'!  It's almost as if the COFFEE permeates the screen.  And you'll be inspired by his mug and COFFEE choices.  *sigh*  Cheers!
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Friday, August 05, 2011

Handwritten 08052011

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5 Things My World Showed Me Today


  1. You may pay Uncle Sam on time, but he pays YOU when (or if) HE feels like it.
  2. Once you've gained your mental freedom, the world will go to great lengths to try to steal it back...yet again.
  3. No one gives a good-whoot-nanny about how they affect the larger picture, taking great risks with the lives of others in all kinds of scenarios.
  4. Well-rounded doctors are hard to find, but doctors come a dime a dozen.
  5. Healthcare patients with patience are hard to find, and one phony can destroy the lives of thousands.  Thousands!
"Be good.
Be a good patient.
Be a good patient with patience."

~MissNikkiAnn

2011 Conferences | Democracy Convention

Have a look...

Convention Banner
"Where will you be?"
~MissNikkiAnn

30 Years Ago Today: The Day the Middle Class Died | MichaelMoore.com

This is a great read for people in their 20s and younger. As for me, born in the 70s, I actually remember the time Michael Moore speaks of.
30 Years Ago Today: The Day the Middle Class Died | MichaelMoore.com

Thursday, August 04, 2011

Bedtime Story

Finally sleep knocked at my door. She gave me a sincere warning about the 'morrow. Gently reminding that it's closer than intolerance wants to admit. I lifted my foot and kicked intolerance out the door, leaving intolerable to guard it and sleep to enter immediately. The end.

~MissNikkiAnn

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Handwritten 08042011

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Smithsonian Channnel for Android

Check out "Smithsonian Channel"
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My Words: Hospital Day

The day is coming to an end. It was a long and miserable one for me. I got really sick yesterday; began fainting while driving from one appointment to the next, so I skipped the second appointment and went home. I was so sick that I had to crawl from the back door from which I'd entered to my bedroom.

Then the sickness continued into today. My poor infusion nurses had to call my doctor to request intravenous Zofran and some Benadryl. Then I took a Tramadol to attemp to ease the pain. I called mom, on the verge of tears and a nervous breakdown, told her that she might have to come back to the hospital to see about me. What she could have done for me? Not a dayum thang.

The only good part about my day was tha AMC is having #MobWeek, so I got to watch the likes of Al Pacino and Robert Deniro, two of my favorite guys.

Now I'm finally home and in the bed. But dontcha know, life doesn't take a vacation, only the final permanent one, and that's more like retirement. Anywho, I got two denials today, which fit perfectly with the denial my mind is in when it thinks it can outsmart Dysautonomia.

Sir and I are calling it a night. Maybe you should, too.

"Be good.
Be patient.
Be hood when necessary."
~MizzNikkiAnn
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Tuesday, August 02, 2011

All Hail Super Congress by The Amazing Atheist

Me likes.
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The Wait

I'm at my auto mechanic's shop having my air conditioner charge; so I thought I'd say hello to my blog page: Hello page.

Summers are not my disabilities' friend. I am hospital-ridden every Friday (soon to switch days so I can reconvene another Friday standing appointment) from 6:45 a.m. until 4 p.m. for my infusion session. And let me be clear, without that infusion, I would be 100% bedridden like I was last summer and the one before. So now I am able to be out of the bed for about 25% of the time. Wait a sec... God is so good, I tell you! My writing was just now interrupted by a call from my doctor's office. As much as I appreciate my infusions, it's a pain for me and my doctor's staff trying to schedule them and keep it all in order. His assistant just called to say that she was able to book me for the rest of the year AND into the beginning of 2012. It's an even bigger deal because so many dysautonomia patients don't have access to this treatment, so I try not to moan and groan about how time-consuming it is. If spending one day each week in the hospital results in my having a bit more mobility to care for Sir, then I shall endure until I can endure no more. "Be good. Be patient. Be in the moment." ~MissNikkiAnn
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Monday, August 01, 2011

My Appreciation Goes Out To Connecticut Top Blogs

Connecticut Top Blogs

I just want to say that it's not "important" that my blog be recognized by anyone.  What is important is that when it happens that I realize what a blessing it is to have your work being enjoyed (or whatever is the case) by others.  It is a natural, human tendency to seek, not acceptance, but basic recognition from one's own "tribe" (family/community).

So I am thankful to be seen and to be heard, and that, considering all the devastation around the the globe, is a blessing and opportunity that I cannot allow myself to take for granted.

Thank you to Connecticut Top Blogs for "seeing" me.

"Be good.
Be patient.
Be in the moment."

~MissNikkiAnn

Connecticut Top Blogs

I received this email today:


"Dear blogger,

We would like to inform you about the launch of a new site www.connecticuttopblogs.com.

The ConnecticutTopBlogs.com is a local blogs aggregator that republishes the titles of new posts from selected local blogs and presents them to visitors in a simple and convenient manner.

Your blog was chosen among many other local blogs, and you can see how your posts are displayed on ConnecticutTopBlogs.com.

If you agree with this, the only thing we ask you is to put our banner to your blog. 

Visitors of ConnecticutTopBlogs.com can monitor all top local blogs at a glance, and by clicking on the posts of their interest to be referred to the source blog.

The traffic of ConnecticutTopBlogs.com is growing rapidly day by day, making this service a most effective way to promote your blog to concerned users.

We hope you find ConnecticutTopBlogs.com a useful service and recommend it to your friends.

* This email is informational and we will not bother you again.

Sincerely,
ConnecticutTopBlogs.com

----------------------------------------
www.ConnecticutTopBlogs.com
Public Blog Aggregator of Connecticut (CT)"

Sunday, July 31, 2011

My Words: July 31, 2011

Outside.  Goosebumps.  She says, "Whether people know it or not, fall is in the air."  She's right--even the birds sing its praises this morning.  The worms will be coming closer and closer to the earth's surface.  Fall is coming.  Harvest is coming  to humanity, closer and closer to the earth's surface.

Crisp air blessing my lungs.

Fresh dew wetting my legs as I walk through the grass.

And that Canadian breeze whipping through New England.

Goosebumps.

Parents With Dysautonomia

A dear friend of mine recently left me the following post on MDJunction. She is such a continual source of encouragement for me and other dysautonomic parents.  I share it with you so that you may also be encourage, whether you have dysautonomia or not--we are all living a human experience with innate issues.

"Thanks so much for taking the time to reply even though you are feeling so ill. I am so sorry hear things are really rough all the way around. It must be extremely difficult trying to make all these important decisions with feeling so ill. We have as well had to make financial decisions as I cannot work...at times this week I just wanted to crawl into a dark hole because I felt my mind just could not focus on another thing.I have to constantly remind myself he has never let me down and know matter how bad things look to not focus on what is seen but on what is unseen. 2 Corinthians 4 16-18 has been a comfort to me lately. Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal. This has been a good reminder for me 

I will be praying strong for you Nikki (I hope you don't mind if I call you Nikki, I have been meaning to ask you this.)

Sending hugs and prayers your way, Jan xo"


The original post may be found at the following link:
Parents With Dysautonomia (page 2).

"Be good.
Be patient.
Be in the moment."


~MissNikkiAnn

Optical Light Sensitivity - Irlen Syndrome

I totally relate to this guy's issues. It's what I endure everyday but have a hard time relaying it to others; so I thought I'd share, being that he does a great job of explaining.


BET Has Become The New KKK | News One

I Agree:

@Digitwirl: The Weekly Web Show That Makes Tech Work For You

Me likes:
Also find Digitwirl on Twitter:  @digitwirl

Friday, July 29, 2011

New Time, New Adventure

I'm on a new adventure. And when using the word "adventure," there is always the sense of the unknown lingering about. I try not to feel one way or the other, just centered in each moment that I am given, knowing that my moments won't last forever. And with things being the way the are with my body, I am forced to move at a snail's pace, the difference is that I've made peace with it and am learning not to be consumed by what others may (or may not) be thinking about the way I must live my life. Overall, I doubt it's an existence that would satisfy the average First-Worlders' need for extravagance and privies, but in the chronic illness and disability world, my life ain't so bad.

"Be good.
Be patient.
Be in the moment."



~MissNikkiAnn
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The Breast Crawl

Life Is Amazing

Turning the Pages™, the British Library

An Online Gallery

Turning the Pages™, the British Library

Sunday, July 24, 2011

Judgement Day by @darksempyrean

This is my YouTube (http://www.youtube.com/user/TheDarksEmpyrean) and Twitter (http://twitter.com/#!/darksempyrean) friend Al. He's so talented, great vocals and theatrics.

WARNING: This scared the shyt out of me but was worth the watch!

Wednesday, July 13, 2011

Revamp

The same way Blogger has revamped it's face, I am attempting to do the same with my "faces" around the web.  Things in the world are ever-changing, and since I am currently of this world, I am changing with it.  Gotta take a better look and stock of what I have going on on the interwebs.  It shouldn't take much longer, as I've been at it for a while anyway.  There are so many tools and vehicles; and you can find that, once you've tested lots of them, your efforts begin to be a little scattered, causing confusion for your audience.

I doubt I'll close any of my pages, I just won't be directing my newer viewers to them.  If a viewer is interested in all the work I've done on the internet since 2005 (I've been on longer than that but feel my meatier work started in 2005), they can google "MissNikkiAnn" and read/see my evolution.

I hope all are well.  And if not, I pray that you find peace in the midst of the storms of life.




"Be good.
Be patient.
Be in the moment."
~MissNikkiAnn
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Sunday, July 10, 2011

It Is I...

It's been a struggle today. Hell, it's always a struggle. I stayed in my pajamas all day. Tweeted with some tweeps. Google+'d with some old Twitter and Seesmic folk. Listened to NPR. Yelled at Sir. Yelled at Sir some more. Toasted marshmallows in the backyard, while still wearing those pajamas. Did 6 puzzles with Sir. Played Operation and Bed Bugs with Sir. Watched some YouTube videos. Made a YouTube video. Started my Pinterest board. Curated my Pearltrees. Took my Dailymughshot shot. Had my regular coffee. Had my decaf coffee. Listened to my one voicemail. And I think I am about to yell at Sir again. This means I've basically come full circle. Wait...I just got an email. Let's see... *reading email* Oh...how nice...someone on Twitter retweeted one of my tweets and my email felt that I needed to know. Yes, email has feelings.

Now yelling at Sir...

"Be good.
Be patient.
Be in the moment."
~MissNikkiAnn

Sunday, July 03, 2011

WOW! Motorcyclist Dies On Ride Protesting Helmet Law In New York

I just had to post this!

Motorcyclist Dies On Ride Protesting Helmet Law In New York
"ONONDAGA, N.Y. -- Police say a motorcyclist participating in a protest ride against helmet laws in upstate New York died after he flipped over the bike's handlebars and hit his head on the pavement.
The accident happened Saturday afternoon in the town of Onondaga, in central New York near Syracuse.
State troopers tell The Post-Standard of Syracuse that 55-year-old Philip A. Contos of Parish, N.Y., was driving a 1983 Harley Davidson with a group of bikers who were protesting helmet laws by not wearing helmets.
Troopers say Contos hit his brakes and the motorcycle fishtailed. The bike spun out of control, and Contos toppled over the handlebars. He was pronounced dead at a hospital.
Troopers say Contos would have likely survived if he had been wearing a helmet.
___
Array of Huffingtonpost.com"

Friday, July 01, 2011

Consciousness with Mooji

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Mooji

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Derek Overbey's (@doverbEy): What’s the “Buzz” About Google+

Click the link to read the article:
What’s the “Buzz” About Google+ | A Bird's Eye View

Pearltrees: Google Sites

Google in (cqtlc)

@NadiaBodkin Is Looking for Sponsors As She Vies for Miss NJ USA

My friend Nadia is running for Miss New Jersey USA. She has Ehler's Danlos Syndrome and wants to use the pageant as a platform for spreading awareness of this illness that also falls within the Dysautonomia family. This means that in return for helping her, you'd be helping me and other autonomic nervous system failure patients.