Tuesday, May 31, 2011
Sunday, May 29, 2011
Chronically Hopeful: [Hospital Visits]
A very funny reenactment and typical Dysautonomia/POTS emergency room experience.
Friday, May 27, 2011
Wednesday, May 25, 2011
Monday, May 23, 2011
Saturday, May 21, 2011
Friday, May 20, 2011
Thursday, May 19, 2011
3 people in same family with neuro immune disease
I have quite a few YouTube friends who have this disease. And though I do not have ME (Myalgic Encephalomyelitis) myself, ME and Dysautonomia present with lots of the same symptoms and syndromes.
But that's not what's most important about this video. What shocked me the most was knowing that ME hit an entire family. This woman is caring for her THREE children who are suffering, living under the same roof. I love the part where the son talks about not having seen his sibling in FIVE MONTHS, even though their bedrooms are next to each other. They're symptoms are so bad that they never leave their bedrooms, let alone the house!
I am proud of this mother's strength!
But that's not what's most important about this video. What shocked me the most was knowing that ME hit an entire family. This woman is caring for her THREE children who are suffering, living under the same roof. I love the part where the son talks about not having seen his sibling in FIVE MONTHS, even though their bedrooms are next to each other. They're symptoms are so bad that they never leave their bedrooms, let alone the house!
I am proud of this mother's strength!
Wednesday, May 18, 2011
Tuesday, May 17, 2011
Documentary Interview with 2 girls with CFS (chronic fatigue syndrome) b...
Along with my Dysautonomia/POTS, I have Chronic Fatigue Syndrome. I relate to this documentary.
Sunday, May 15, 2011
Dr. Anne McIntyre Interviews the boy Wessely had sectioned.
~"Do I have to die to prove how ill I feel?" (Quote taken from video)
That question is still resonating with me. My gosh!!!
Thursday, May 12, 2011
Thursday, May 05, 2011
Tuesday, May 03, 2011
Sunday, May 01, 2011
Friday, April 29, 2011
Sunday, April 24, 2011
Musical Vibrations in Satsang [Mooji's birthday] 29 Jan 2011
I love this song. And to hear her performing it live in this video moved me to such peace and understanding.
Saturday, April 23, 2011
Doctor's Referral Site by dysautonomiaMD
This wonderful woman is a DOCTOR with Dysautonomia. Her advice has been of tremendous help to many and countless other Dysautonomia patients.
Thursday, April 21, 2011
Tuesday, April 19, 2011
Friday, April 15, 2011
Familial Dysautonomia
Familial Dysautonomia is a rare Jewish Genetic Disorder. It's first cousin is Non-Familial Dysautonomia, which is what I have. But both exhibit the same symptoms and issues.
Thursday, April 14, 2011
Monday, April 11, 2011
5 Things My World Showed Me Today
1. So...France doesn't like veils. Uh...okay. Only men. Only men.
2. April 11, 1954 was named the most uneventful day in history. Poor April 11, 1954, I weep with you and those BORN on that day who's lives must've been or still remain uneventful as well.
3. Government remains. We The People are so lucky. (insert sarcasm)
4. China hates Christianity.
5. China REALLY hates The United States.
2. April 11, 1954 was named the most uneventful day in history. Poor April 11, 1954, I weep with you and those BORN on that day who's lives must've been or still remain uneventful as well.
3. Government remains. We The People are so lucky. (insert sarcasm)
4. China hates Christianity.
5. China REALLY hates The United States.
Published with Blogger-droid v1.6.8
Sunday, April 10, 2011
Friday, April 08, 2011
5 Things My World Showed Me Today
1. California is having major issues with criminals within its Psychiatric Hospitals...like murder...and the fact that violence is up 37%.
2. NATO is "unknowingly" blowing up rebel Libyan forces. The rebels say they've informed NATO of their tanks, NATO says they had no knowledge of the tanks.
3. Milk has killed babies in Japan. I heard an excerpt on NPR this morning where a guy said that people are basically being paranoid about the radioactivity issue. Oh...okay!
4. I've gotta addmire the crazed Republicans' determination on the budget. It might serve America more if it were for the betterment of "We The People" and not their own agenda.
5. Portugal needs financial assistance; so do I. And so does the majority of college-bound Americans. But guess which group is more likely to get help from America? And it won't be "We The People."
2. NATO is "unknowingly" blowing up rebel Libyan forces. The rebels say they've informed NATO of their tanks, NATO says they had no knowledge of the tanks.
3. Milk has killed babies in Japan. I heard an excerpt on NPR this morning where a guy said that people are basically being paranoid about the radioactivity issue. Oh...okay!
4. I've gotta addmire the crazed Republicans' determination on the budget. It might serve America more if it were for the betterment of "We The People" and not their own agenda.
5. Portugal needs financial assistance; so do I. And so does the majority of college-bound Americans. But guess which group is more likely to get help from America? And it won't be "We The People."
Published with Blogger-droid v1.6.8
Thursday, April 07, 2011
What My World Showed Me Today, Episode 1 (Video)
A video spin-off of "5 Things My World Showed Me Today."
5 Things My World Showed Me Today
- Beijing, China believes outlawing luxury “terms” will enslave their people into thinking all are equal, while allowing luxury promos on their soap operas.
- Blockbusters refuses to die quietly like Borders bookstores.
- Adorable squirrels attempting to dash across the street early mornings should fear overtly-caffeinated moms in unassuming family-styled cars.
- In 1965, Medicare was formed for the elderly, serving 7 billion of them.
- In 1972, Medicare was extended to include the disabled, which has resulted in a spike of 500 billion people aided in 2010.
Wednesday, April 06, 2011
5 Things My World Showed Me Today
1. Some dude on NPR's Lesbian/Gay/Bisexual/Transgender (LGBT) show "This Way Out" believes that America hasn't seen angry gay men, and that if we had we'd fear their societal powers more.
2. Again on "This Way Out" I learned that the LGBT doesn't have a Civil Rights headman, like a MLK, Jr.
3. I know many lesbians, gays and bisexuals (no transgenders, though) and I guess I was just a dumb, ignorant, black straight woman for just viewing them as fellow friends and countrypeople.
4. Everyone (even LGBTs) want to be validated, loved and appreciated for their differences, not just Native Americans, Negroes and Puerto Ricans.
5. Connecticut weather is confused. As it always is.
2. Again on "This Way Out" I learned that the LGBT doesn't have a Civil Rights headman, like a MLK, Jr.
3. I know many lesbians, gays and bisexuals (no transgenders, though) and I guess I was just a dumb, ignorant, black straight woman for just viewing them as fellow friends and countrypeople.
4. Everyone (even LGBTs) want to be validated, loved and appreciated for their differences, not just Native Americans, Negroes and Puerto Ricans.
5. Connecticut weather is confused. As it always is.
Published with Blogger-droid v1.6.8
Monday, April 04, 2011
5 Things My World Showed Me Today
1. President Obama is willing to subject himself to 4 more years of public ridicule.
2. Michelle Obama must've okayed this choice because behind every great man...
3. The radiation contamination issue is bigger and more relevant than any world government is willing to admit to its people.
4. I look like "Boo Boo The Fool."
5. No one is gonna give up driving to boycott the ever rising gas prices.
2. Michelle Obama must've okayed this choice because behind every great man...
3. The radiation contamination issue is bigger and more relevant than any world government is willing to admit to its people.
4. I look like "Boo Boo The Fool."
5. No one is gonna give up driving to boycott the ever rising gas prices.
Published with Blogger-droid v1.6.8
Sunday, April 03, 2011
5 Things My World Showed Me Today
- Wheelchairs aren’t the easiest things to operate on grass.
- Wheelchairs are more easily maneuvered on grass if you push off with your feet towards a backwards direction.
- Spring’s on the calendar but snow and cold are in Connecticut’s forecast.
- Year after year we Northeasterners act as if it should be warmer.
- Mother Nature could give a shyt about Northeasterners’ feelings about the cold air’s war with the warm calendar date.
Friday, April 01, 2011
Thursday, March 31, 2011
5 Things My World Showed Me Today
1. Cobra's like to take vacations too.
2. Moammar (Muammar, Muʿammar) al-Gadhafi (Gaddafi, Qaḏḏāfī) holds 2 consistencies:
i. his middle name is Muhammad (across the board);
ii. he refuses to give in.
3. "911 is a joke" in many areas.
4. Too much fear and you'll be afraid of your own shadow.
5. When it comes to student loans and paying for college, no matter what, have a plan A, B, C, D, E....whatever it takes to NEVER have to take out a loan, even if that means community college.
Be well.
Be patient.
Be in the moment.
MissNikkiAnn
Wednesday, March 30, 2011
Spotlight On: MamaSick's Blog (@Mamasick on Twitter)
For my fellow chronic illness peeps, I love MamaSick's down-to-earth blogging. She's a chronic illness sufferer, wife and mother. And despite the odds, she finds the time to share her life through her writing.
At this time she is accepting guest bloggers, so go over to her site and have a look-around. I have been inspired much by her blogging and interacting with her on Twitter.
5 Things My World Showed Me Today
1. Algae in the Connecticut River looks like "dried up paper towel" (cited from NPR).
2. People fighting for democracy believe that it should happen overnight.
3. Grasping causes avoidable suffering.
4. You can call your doctor and be waiting until you die to hear back from them.
5. Good doctors are sometimes the hardest to contact.
Be well.
Be patient.
Be in the moment.
MissNikkiAnn
2. People fighting for democracy believe that it should happen overnight.
3. Grasping causes avoidable suffering.
4. You can call your doctor and be waiting until you die to hear back from them.
5. Good doctors are sometimes the hardest to contact.
Be well.
Be patient.
Be in the moment.
MissNikkiAnn
Monday, March 28, 2011
5 Things My World Showed Me Today
1. The peanut allergy scare is going too far.
2. The President Of The United States gave "that speech" on Libya to shut Congress up.
3. The "Bail Out" deficit is WAY less than originally predicted.
4. People falsely believe that wind power is THE TOTAL answer.
5. One mustn't forget to pay their electric bill when buying an electric car.
Be well.
Be patient.
Be in the moment.
MissNikkiAnn
2. The President Of The United States gave "that speech" on Libya to shut Congress up.
3. The "Bail Out" deficit is WAY less than originally predicted.
4. People falsely believe that wind power is THE TOTAL answer.
5. One mustn't forget to pay their electric bill when buying an electric car.
Be well.
Be patient.
Be in the moment.
MissNikkiAnn
Published with Blogger-droid v1.6.8
Sunday, March 27, 2011
Saturday, March 26, 2011
MissNikkiAnn's Pearltrees
Been busy this Saturday morning curating my Pearltrees. Have a look around. Or don't. So many choices.
Friday, March 25, 2011
Thank God for Earth Angels (@YellowGirlTaz)
I was sitting here...in so much pain that I thought I was gonna lose my mind, when Crystal (@yellogirltaz) sent me the following email (and I am sure lots of you have already read it):
MY FRIDAY STORY
THE SECRET -- WITH A TWIST
by Michael Jordan Segal, MSW
There is a book and movie called "The Secret" which describes how to find happiness, wealth, good health. It was, and still is, a phenomenal success. The book describes many well known individuals throughout the ages, documenting their ability to "know the secret."
What is "the secret"? According to the book, the "secret" is what is referred to as "the Law of Attraction." More simply put, "the way one thinks has a direct relationship to what happens to the individual." If one thinks the situation will be good, it will. If one thinks things will go badly, they will. It does not matter what subject you think about. According to "The Law of Attraction" if you truly think and believe there will be a parking spot up close at the mall, there will be one. If you truly think and believe your life will be terrible, it will be. It is more than "the power of positive thinking," but that's a very good beginning.
I often tell the story of when I was hurt. My attitude was very negative. I thought: "Before I was injured I could do 500 things really well; now, because of my physical limitations, I can only do 200 things well." I was constantly dwelling on the 300 things I had lost. However, with time I learned to refocus my thoughts to the 200 things I could still do. That thinking, and my new positive attitude, were so vital for me, as well as vital for everyone else.
Am I saying, "If one believes and thinks positively everything will be great"? Of course not. To borrow a portion of a title from Harold Kushner's best selling book, "Bad Things Happen to Good People." I realize that sometimes life is not fair: babies unfortunately pass away; innocent people are murdered; hurricanes and earthquakes often devastate cities and kill many people. I could go on and on.
I love the quote: "What happens to you in life is 90%; but how you react to it is an important 10%!" What that means is that one's attitude plays a huge difference.
In my opinion, that's the "twist" of "The Secret." Sure, one's thinking is a huge part of life and finding happiness. However, I did not need Harold Kushner to make me realize "bad things happen to good people," (but thanks). The Holocaust was one of the worst events of history; the Viet Nam War brought pain to so many; the destruction of the World Trade Center brought anguish and pain to countless millions. All of these events were terrible. But typhoons and hurricanes occur with regularity; tsunamis and cyclones also cause unbelievable pain and wreckage; wars are with us in every generation and result in so much misery; people who do not smoke get lung cancer. All of these things are terrible experiences. There are terrible events of the past AND the present AND they surely will again be part of our future. Unfortunately, they have been and will be part of our lives -- the bad and the good in our lives.
I believe with the right attitude and thinking a person can not only survive, but also thrive, if not here on earth, than in many people's wonderful memories.
And that is a great twist!
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