MissNikkiAnn's House

"Be good. Be patient. Be in the moment." ~MissNikkiAnn

Friday, May 31, 2013

Dysautonomic Relief

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I access my own port (putting the needle into my chest) and administer my own IV meds (which are way better and faster acting than oral meds...

For Those Who Have Emailed Me

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First:  Thank You!  Since removing the comments option from the blog (which I decided lacked intimacy and mutual privacy); I have received l...

Dysautonomic Behavior

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It's how I roll.  And I work overtime.  No vacation days.  No holidays off.  I'm on the dysfunctional Dysautonomic grind.  All day. ...
Thursday, May 30, 2013

Park Avenue: Money, Power and the American Dream

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Watch Park Avenue: Money, Power & the American Dream on PBS. See more from Why Poverty?.
Thursday, May 23, 2013

Chronically Aggressive

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I have been living with my illnesses' most persistent and debilitating symptoms since 2009.  You would think that living with someth...
Wednesday, May 22, 2013

Ranted Ramblings on Disco Piss

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The hamster is hiding in one of her loops.  I haven't known her long, but so far she seems to go there when Sir and I have frustrated th...
Tuesday, May 21, 2013

A Story: Epipen and Nasty Nan

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found myself alone with an amazing from scratch spaghetti with meat sauce by one of my favorite family-owned restaurants.  this is new engla...
Monday, May 20, 2013

Freestyle Ramblings: I Could Almost Cry

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Finding my way out of a hole.  Crazy rabbit hole.  A rabbit hole that seems to be turning into a circular mess.  Sometimes you have to let l...
Saturday, May 11, 2013

Coffee and Outlook: Boycott, Divestment and Sanctions (BDS)

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From where I'm sitting, today is proving to be just as impressive as all others.  We humans never miss a beat when it comes to slow shoc...
Thursday, May 09, 2013

Pimped

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"More and more all nations are realizing just how much we are being pimped by our systems and big money.  World War III is beginning wh...
Sunday, March 31, 2013

MNA Speaks: From Lent to Easter

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Thursday, February 21, 2013

Was just thinking on how...

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We are never satisfied.
Thursday, January 10, 2013

On Parting The Red Sea

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Just finished watching this, and I wanted to reshare it with you. Unfortunately your browser does not support IFrames. Watch More News V...
Wednesday, November 21, 2012

Just ONE Year Ago: Two Palestinians girls arrested during home demolitions in Umm Fagarah, ...

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Men of this kind (any background...color...religion)...are worthless.
Saturday, October 27, 2012

#Dysautonomia Tweet-A-Thon by Dysautonomia SOS

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The article below has been copied from:  http://dysautonomiasos.tumblr.com/ SUNDAY! The ORIGINAL Tweet-A-Thon, taking place with any...
Wednesday, August 15, 2012

Adequate: McDonalds Coffee In A Starbucks Mug

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Feeling like hot boo boo.  Sitting in my recliner (which I never do, I have reserved it for guests) with a blanket over me, popping pain med...
Thursday, August 09, 2012

Hospital Day

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There's this... This... And now this... I tried. ~MissNikkiAnn

Willow Smith: "Keeking" It

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Found this little piece (Keek allows up to 36 seconds of video) by Willow Smith.  I listened to it over and over.  We are bombarded by hyped...
Monday, July 30, 2012

Sleep? Study

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You know just about how much sleep I was able to get with all of this going on. Published with Blogger-droid v2.0.6
Sunday, July 15, 2012

Nostalgia: LET'S GO! Jamming to "A Tribe called quest - 'Scenario'"

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This is one of Sir's (my 7-year-old) favorite songs.  Today I read the lyrics to him, explaining the history of the "retro" l...
Friday, July 13, 2012

The Guest House Occupied by Pain

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Tuesday, July 10, 2012

Shit...I Can't Breathe!

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I am here.  Just trying really hard not to go under.  The doctor/hospital/testing schedule of the chronically ill in America is very ti...
Friday, July 06, 2012

A Chronic Illness/Spoonie Rant (Warning: contains adult language)

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Wednesday, July 04, 2012

FANTASTIC FIVE YOU TUBERS: @MissNikkiAnn Made TuckerZone's Cut!

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Nidge is a wonderful guy and a great supporter of YouTube's chronically ill community.  He is a rare and much appreciated find, talent...
Wednesday, June 27, 2012

To MissNikkiAnn

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I am humbled.  I love Doctor Susie!
Wednesday, June 20, 2012

For My Family/Friends/Others Wanting to Understand My Dysautonomia

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This is an awesome resource about one of my dysautonomias.  *Please be forewarned that it is not for the faint of heart, this is for those ...
Wednesday, June 13, 2012

Life As Mai Straubury Kay -- A Satire by @MissNikkiAnn (blog episode 1.0)

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Saturday, June 02, 2012

It has occurred to me that...

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~MissNikkiAnn Published with Blogger-droid v2.0.4
Wednesday, May 23, 2012

Hello Blog

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I thought it important to stop by and see how you (the blog) are doing.  Let's face it, since falling ill with various (basically, too m...
Saturday, May 19, 2012

Preakness 137: The Contenders | 2012 Preakness

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My bet is on I'll Have Another. PP Silk Horse Owner Trainer Jockey Breeder Morning Line 1 Tiger Walk Sagamore Farm Ignacio Corr...
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MissNikkiAnn
New England, United States
Writer, Researcher, and Social Media Personality living with Dysautonomias: Pure Autonomic Failure (PAF); Postural Orthostatic Tachycardia Syndrome (POTS); Gastroparesis; and Autoimmune Disorders. *MissNikkiAnn was previously diagnosed with Shy-Drager/Multiple Systems Atrophy (MSA), the deadliest of all dysautonomias.
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